Collecting and sharing self-generated health and lifestyle data: Understanding barriers for people living with long-term health conditions–a survey study

R Brown, L Coventry, E Sillence, J Blythe… - Digital …, 2022 - journals.sagepub.com
Background The growing popularity of collecting self-generated health and lifestyle data
presents a valuable opportunity to develop our understanding of long-term health conditions …

" Tricky to get your head around" Information Work of People Managing Chronic Kidney Disease in the UK

ER Burgess, MC Reddy, A Davenport, P Laboi… - Proceedings of the …, 2019 - dl.acm.org
People diagnosed with a chronic health condition have many information needs which
healthcare providers, patient groups, and resource designers seek to support. However, as …

[HTML][HTML] Use of patient portals for personal health information management: the older adult perspective

AM Turner, K Osterhage, A Hartzler, J Joe… - AMIA annual …, 2015 - ncbi.nlm.nih.gov
The personal health information management (PHIM) practices and needs of older adults
are poorly understood. We describe initial results from the UW SOARING project (Studying …

Care Frictions: A Critical Reframing of Patient Noncompliance in Health Technology Design

ER Burgess, E Kaziunas, M Jacobs - Proceedings of the ACM on Human …, 2022 - dl.acm.org
Patient work encompasses a challenging set of activities necessary for learning about and
managing chronic conditions over time. Many patient-centered health technology …

Healthcare providers' experiences in supporting community-living older adults to manage multiple chronic conditions: a qualitative study

J Ploeg, ML Yous, K Fraser, S Dufour, LG Baird… - BMC geriatrics, 2019 - Springer
Background Living with multiple chronic conditions (MCC), the coexistence of two or more
chronic conditions, is becoming more prevalent as the population ages. Primary care and …

Uncovering the invisible patient work system through a case study of breast cancer self-management

RK Gorman, CA Wellbeloved-Stone, RS Valdez - Ergonomics, 2018 - Taylor & Francis
As patients transition from passive recipients to actors in their health management, there is
an opportunity to enhance theoretical frameworks describing the patient work system …

[HTML][HTML] Use of the blue button online tool for sharing health information: qualitative interviews with patients and providers

DM Klein, GM Fix, TP Hogan, SR Simon… - Journal of medical …, 2015 - jmir.org
Background Information sharing between providers is critical for care coordination,
especially in health systems such as the United States Department of Veterans Affairs (VA) …

Human factors analysis, design, and evaluation of Engage, a consumer health IT application for geriatric heart failure self-care

P Srinivas, V Cornet, R Holden - International Journal of Human …, 2017 - Taylor & Francis
Human factors and ergonomics (HFE) and related approaches can be used to enhance
research and development of consumer-facing health information technology (IT) systems …

[HTML][HTML] Anticipating ageing: Older adults reading their medical records

I Huvila, H Enwald, K Eriksson-Backa… - Information processing & …, 2018 - Elsevier
In spite of the general interest in health information behaviour, there is little earlier research
on how older adults, who are still active in working life but approaching retirement, differ …

[HTML][HTML] Providing medical information to older adults in a web-based environment: systematic review

B McLean, N Hossain, V Donison, M Gray, S Durbano… - JMIR aging, 2021 - aging.jmir.org
Background: Cancer is a disease that predominantly affects older adults, and several
organizations recommend the completion of a geriatric assessment to help with cancer …