Making the future together: Shaping autism research through meaningful participation
Participatory research methods connect researchers with relevant communities to achieve
shared goals. These methods can deliver results that are relevant to people's lives and thus …
shared goals. These methods can deliver results that are relevant to people's lives and thus …
The AASPIRE practice-based guidelines for the inclusion of autistic adults in research as co-researchers and study participants
As interest in autism in adulthood grows, so does the need for methods to promote the
inclusion of autistic adults in research. Our objective was to create practice-based guidelines …
inclusion of autistic adults in research. Our objective was to create practice-based guidelines …
Sense-making narratives of autistic women diagnosed in adulthood: a systematic review of the qualitative research
Few qualitative studies have explored the lives of autistic women diagnosed in adulthood,
despite this knowledge being essential to inform awareness of the intersection of autism and …
despite this knowledge being essential to inform awareness of the intersection of autism and …
Creating accessible survey instruments for use with autistic adults and people with intellectual disability: Lessons learned and recommendations
Despite growing appreciation of the need for research on autism in adulthood, few survey
instruments have been validated for use with autistic adults. We conducted an institutional …
instruments have been validated for use with autistic adults. We conducted an institutional …
Participatory autism research: Early career and established researchers' views and experiences
Despite more autism research taking place than ever before, there is a disconnect between
the current landscape of autism research and what autistic people and their allies want from …
the current landscape of autism research and what autistic people and their allies want from …
How is autistic identity in adolescence influenced by parental disclosure decisions and perceptions of autism?
A large body of literature examines parental interpretations of their child's autism diagnosis.
However, research examining intersections between parental disclosure of their child's …
However, research examining intersections between parental disclosure of their child's …
Doing it differently: Emancipatory autism studies within a neurodiverse academic space
H Bertilsdotter Rosqvist, M Kourti… - Disability & …, 2019 - Taylor & Francis
In the current research climate, in which many autistic and autism communities are
increasingly calling for a move towards collaborative forms of research, we consider how a …
increasingly calling for a move towards collaborative forms of research, we consider how a …
A systematic review of recruiting and retaining sociodemographically diverse families in neurodevelopmental research studies
Underrepresentation of socioeconomically, culturally, and/or linguistically diverse (SCLD)
children with neurodevelopmental disorders (NDD) and their families has become a focal …
children with neurodevelopmental disorders (NDD) and their families has become a focal …
A strengths-based approach to autism: Neurodiversity and partnering with the autism community
AL Donaldson, K Krejcha, A McMillin - … of the ASHA Special Interest Groups, 2017 - ASHA
The autism community represents a broad spectrum of individuals, including those
experiencing autism, their parents and/or caregivers, friends and family members …
experiencing autism, their parents and/or caregivers, friends and family members …
An expert roundtable discussion on experiences of autistic autism researchers
Historically, few autism researchers have been openly autistic. Indeed, the institutions,
practices, and culture of autism research have largely been shaped by nonautistic people …
practices, and culture of autism research have largely been shaped by nonautistic people …