Black sickle cell patients' lives matter: healthcare, long-term shielding and psychological distress during a racialised pandemic in England–a mixed-methods study

MJ Berghs, F Horne, S Yates, S Graham, R Kemp… - BMJ open, 2022 - bmjopen.bmj.com
Objective To understand the psychological and social impact of shielding on people with
sickle cell disorders and their carers in the Midlands region of England. This region was …

The indignities of shielding during the COVID-19 pandemic for people with sickle cell disorders: an interpretative phenomenological analysis

M Berghs, F Horne, S Yates, R Kemp… - Frontiers in …, 2024 - frontiersin.org
This article seeks to understand the first-hand experiences of people with sickle cell, a
recessively inherited blood disorder, who were identified as clinically extremely vulnerable …

Mental health and psychological resilience in sickle cell disease

MJ Treadwell - The Lancet Haematology, 2023 - thelancet.com
In 2019, WHO launched a Special Initiative for Mental Health that outlined the enormous toll,
yet widespread neglect, of mental health disorders globally. 1 The initiative further notes that …

“Into the Lion's Den”: COVID-19 Experiences of Black Adults with Sickle Cell Disease

NS Matthie, DL Clayton-Jones… - Qualitative Health …, 2022 - journals.sagepub.com
Adults living with sickle cell disease are at risk for experiencing severe illness from
coronavirus disease 2019 (COVID-19) due to the complexity of their disease. Additionally …

[HTML][HTML] The real impact of COVID‐19 on an East London Sickle cell population: results of a service‐wide survey

R Hall, J Meenan, D Mihalca, A Katumba… - British Journal of …, 2021 - ncbi.nlm.nih.gov
Since the beginning of the coronavirus disease 2019 (COVID-19) pandemic in early 2020,
patients with sickle cell disease (SCD) have been considered a 'high-risk'group as a result of …

Reflections from a Psychologist Working with Sickle Cell and Thalassaemia Patients during the COVID-19 Pandemic

DK Osakonor, DA Tsitsikas - Medicina, 2022 - mdpi.com
Sickle cell disease and thalassaemia are life-long haematological diseases that can impact
the quality of life of patients. This impact on quality of life can require intermittent …

Experiences of hospital care and treatment seeking for pain from sickle cell disease: qualitative study

K Maxwell, A Streetly, D Bevan - Bmj, 1999 - bmj.com
Objective: To investigate how sociocultural factors influence management of pain from sickle
cell disease by comparing the experiences of those who usually manage their pain at home …

[HTML][HTML] Understanding the health-care experiences of people with sickle cell disorder transitioning from paediatric to adult services: This Sickle Cell Life, a …

A Renedo, S Miles, S Chakravorty, A Leigh, JO Warner… - 2020 - europepmc.org
Background Transitions from paediatric to adult health-care services cause problems
worldwide, particularly for young people with long-term conditions. Sickle cell disorder …

Caught between pity, explicit bias, and discrimination: a qualitative study on the impact of stigma on the quality of life of persons living with sickle cell disease in three …

NS Munung, M Treadwell, KK Kamga… - Quality of Life …, 2024 - Springer
Purpose Sickle cell disease (SCD) is an inherited blood disorder characterized by
unpredictable episodes of acute pain and numerous health complications. Individuals with …

Mental health assessment of youth with sickle cell disease and their primary caregivers during the COVID‐19 pandemic

NS Green, D Manwani, K Smith‐Whitley… - Pediatric Blood & …, 2022 - Wiley Online Library
Youth with sickle cell disease (SCD) and their caregivers are susceptible to stress and
depression, perhaps exacerbated by pandemic‐associated health and economic concerns …