Reconsidering dynamic consent in biobanking: ethical and political consequences of transforming research participants into ICT users

A Soulier - IEEE Technology and Society Magazine, 2019 - ieeexplore.ieee.org
Biobanks are not new. However, the scope of their application is growing, especially in
genomics. Biobanks are also currently being reorganized to enable more genomic samples …

Workshop Proceedings: Informed Consent in Biobanking–from the Key Barriers, Challenges, and Perceptions to Digital Innovations: ISBER Virtual Annual Meeting …

D Ivanova, P Katsaounis - 2022 - meridian.allenpress.com
Biological material of human and nonhuman origin has been collected for decades, creating
repositories through the years that serve as source for research and education, with the …

Biobanks—when is re-consent necessary?

KS Steinsbekk, B Solberg - Public Health Ethics, 2011 - academic.oup.com
The unknown nature of tomorrow's research makes informed consent in biobank research a
challenge. Whether the consent given by biobank participants is 'broad'or 'narrow', the ever …

[HTML][HTML] Banking together: a unified model of informed consent for biobanking

E Salvaterra, L Lecchi, S Giovanelli, B Butti… - EMBO …, 2008 - embopress.org
During the past 10 years, human bio-logical material—body fluids, cells, tissues, intracellular
substances or Dna—and the related data have become an important resource for academic …

[HTML][HTML] Biobanks and informed consent

G Foe - Voices in Bioethics, 2014 - philpapers.org
Biobanks have added complexity to the idea of informed consent, which is an important
ethical component in research involving human subjects. The idea behind informed consent …

Informed consent and research biobanks: a challenge in three dimensions

M Macilotti - Comparative Issues in the Governance of Research …, 2012 - Springer
The debate about the requirements of informed consent in research biobanks has been
heated in the last few years. This debate originates from the peculiarity that characterises the …

[PDF][PDF] Reforming biobank consent policy: a necessary move away from broad consent toward dynamic consent

DT Stein, SF Terry - Genet Test Mol Biomarkers, 2013 - researchgate.net
The field of genomic-based medicine has power in numbers. With the increasing ability of
new technology infrastructures to allow streamlined data sharing, there is a rising potential …

[HTML][HTML] Research participants' perceptions and views on consent for biobank research: a review of empirical data and ethical analysis

F D'Abramo, J Schildmann, J Vollmann - BMC medical ethics, 2015 - Springer
Background Appropriate information and consent has been one of the most intensely
discussed topics within the context of biobank research. In parallel to the normative debate …

Consent and research governance in biobanks: evidence from focus groups with medical researchers

EA Whitley, N Kanellopoulou, J Kaye - Public Health Genomics, 2012 - karger.com
Much is known about patient attitudes to ethical and legal questions in the context of
biobanking, particularly regarding privacy protection and consent. However, little is known …

A proposed approach to informed consent for biobanks in China

M Liu, Q Hu - Bioethics, 2014 - Wiley Online Library
Biobanks are potential goldmines for genomics research. They have become increasingly
common as a means to determine the relationship between lifestyle, environmental …