Data Resource Profile: Nationwide registry data for high-throughput epidemiology and machine learning (FinRegistry)

E Viippola, S Kuitunen… - International Journal …, 2023 - academic.oup.com
• FinRegistry is a curated, nationwide, register-based data resource for developing statistical
and machine learning models, performing high-throughput epidemiological analyses and …

[PDF][PDF] Software Application Profile: Opal and Mica: open-source software solutions for epidemiological data management, harmonization and dissemination

D Doiron, Y Marcon, I Fortier, P Burton… - International journal of …, 2017 - academic.oup.com
Motivation Improving the dissemination of information on existing epidemiological studies
and facilitating the interoperability of study databases are essential to maximizing the use of …

Cohort profile: the LIFE-adult-study

C Engel, K Wirkner, S Zeynalova… - International Journal …, 2023 - academic.oup.com
International Journal of Epidemiology, 2023, e66–e79 https://doi. org/10.1093/ije/dyac114
Advance Access Publication Date: 28 May 2022 Cohort Profile comprehensive molecular …

Nordic health registry-based research: a review of health care systems and key registries

K Laugesen, JF Ludvigsson, M Schmidt… - Clinical …, 2021 - Taylor & Francis
Abstract The Nordic countries are Denmark, Finland, Iceland, Norway, and Sweden and
comprise a total population of approximately 27 million. The countries provide unique …

Clinical epidemiology in the era of big data: new opportunities, familiar challenges

V Ehrenstein, H Nielsen, AB Pedersen… - Clinical …, 2017 - Taylor & Francis
Routinely recorded health data have evolved from mere by-products of health care delivery
or billing into a powerful research tool for studying and improving patient care through …

Real-world evidence from the first online healthcare analytics platform—Livingstone. Validation of its descriptive epidemiology module

BR Heywood, CL Morgan, TR Berni… - PLOS Digital …, 2023 - journals.plos.org
Incidence and prevalence are key epidemiological determinants characterizing the quantum
of a disease. We compared incidence and prevalence estimates derived automatically from …

Data resource profile: regional healthcare information platform in Halland, Sweden

A Ashfaq, S Lönn, H Nilsson, JA Eriksson… - International journal …, 2020 - academic.oup.com
Overcoming the aforementioned challenges involved breaking down internal silos and
uniting stakeholders across knowledge domains. This paper introduces a working concept …

CDEGenerator: an online platform to learn from existing data models to build model registries

J Varghese, M Fujarski, S Hegselmann… - Clinical …, 2018 - Taylor & Francis
Objective Best-practice data models harmonize semantics and data structure of medical
variables in clinical or epidemiological studies. While there exist several published data …

Existing data sources in clinical epidemiology: laboratory information system databases in Denmark

JFH Arendt, AT Hansen, SA Ladefoged… - Clinical …, 2020 - Taylor & Francis
Routine biomarker results from hospital laboratory information systems, covering hospitals
and general practitioners, in Denmark are available to researchers through access to the …

Data resource profile: the New Zealand integrated data infrastructure (IDI)

BJ Milne, J Atkinson, T Blakely, H Day… - International journal …, 2019 - academic.oup.com
The Integrated Data Infrastructure (IDI) is a collection of New Zealand whole-population
administrative data sources from government agencies, the 2013 Census and several …