Objectives: Research-derived evidence about the impact of sickle cell disease (SCD) on the
lives of affected adults is lacking. We conducted formative research to provide the basis for a …

Background Providers and patients have called for improved understanding of the health
care requirements of adults with sickle cell disease (SCD) and have identified the need for a …

Abstract Background Sickle Cell Disease (SCD) causes profound suffering and decrements
in daily functioning. Demand is growing for valid and reliable measures to systematically …

Background Sickle cell disease (SCD) is a chronic disease associated with high degrees of
morbidity and increased mortality. Health-related quality of life (HRQOL) among adults with …

Understanding patient experiences, quality of life, and treatment needs in individuals with
sickle cell disease (SCD) is essential in promoting health and well‐being. We used …

Abstract Adults with Sickle Cell Disease (SCD) experience multiple disease-related
complications, but few studies have examined relationships between these events and …

Background Sickle cell disease (SCD) is a chronic condition associated with high mortality
and morbidity. It is characterized by acute clinical symptoms such as painful vaso-occlusive …

Among 170 adults with sickle cell disease, we evaluated chronic pain impact and disability
prevalence, assessed age and gender differences, and identified psychosocial predictors of …

Background Sickle cell disease (SCD) impacts millions of individuals worldwide and more
than 100,000 people in the United States. Leg ulcers are the most common cutaneous …

Background. Patients with SCD now usually live well into adulthood. Whereas transitions
into adulthood are now often studied, little is published about aging beyond the transition …