Background Adult congenital heart disease (ACHD) guidelines advise life-long, regular,
follow up in predefined intervals for ACHD patients. However, limited data exist to support …

Although different guidelines on adult congenital heart disease (ACHD) care advocate for
lifetime cardiac follow-up, a critical appraisal of the guideline implementation is lacking. We …

Aims The aim of this study was to provide population-based data on the healthcare provision
for adults with congenital heart disease (ACHD) and the impact of cardiology care on …

Objectives: The goal of this project was to quantify the prevalence of gaps in cardiology care,
identify predictors of gaps, and assess barriers to care among adult congenital heart disease …

Background—Clinical guidelines recommend specialized care for adult congenital heart
disease (ACHD) patients. In reality, few patients receive such dedicated care. We sought to …

ObjectiveTo identify risk factors for loss to cardiology follow-up among children and young
adults with congenital heart disease. MethodsWe used a matched case-control design …

Studies describing gaps in care for youth with congenital heart disease (CHD), focus on
those who have returned to care, but rarely those actively missing from care. Our objective …

Background—Many patients with congenital heart disease (CHD) require lifelong care.
However, the duration of cardiology follow-up in children and adults with CHD is unknown …

Aims Improved survival has resulted in increasing numbers and complexity of adults with
congenital heart disease (ACHD). International guidelines recommend specialized care but …

Background Clinical guidelines emphasise the need for specialised adult congenital heart
disease (ACHD) programmes. In 2014, the working group on Grown-up Congenital Heart …