Caring through data: Attending to the social and emotional experiences of health datafication

E Kaziunas, MS Ackerman, S Lindtner… - Proceedings of the 2017 …, 2017 - dl.acm.org
Designing systems to support the social context of personal data is a topic of importance in
CSCW, particularly in the area of health and wellness. The relational complexities and …

Lived data: tinkering with bodies, code, and care work

E Kaziunas, S Lindtner, MS Ackerman… - Human–Computer …, 2018 - Taylor & Francis
Human–computer interaction research on personal informatics in health care has focused
on systems that aim to support patient empowerment and enable better health outcomes …

Care and the practice of data science for social good

E Zegura, C DiSalvo, A Meng - Proceedings of the 1st ACM SIGCAS …, 2018 - dl.acm.org
Data science is an interdisciplinary field that extracts insights from data through a multi-stage
process of data collection, analysis and use. When data science is applied for social good, a …

From personal informatics to family informatics: Understanding family practices around health monitoring

LR Pina, SW Sien, T Ward, JC Yip, SA Munson… - Proceedings of the …, 2017 - dl.acm.org
In families composed of parents and children, the health of parents and children is often
interrelated: the health of children can have an impact on the health of parents, and vice …

Interrogating Data Science

M Muller, C Aragon, S Guha, M Kogan, G Neff… - … Publication of the 2020 …, 2020 - dl.acm.org
Data science provides powerful tools and methods. CSCW researchers have contributed
insightfulstudies of conventional work-practices in data science-and particularly machine …

Using diaries to probe the illness experiences of adolescent patients and parental caregivers

MK Hong, U Lakshmi, K Do, S Prahalad… - Proceedings of the …, 2020 - dl.acm.org
Adolescents with chronic conditions must work with family caregivers to manage their illness
experiences. To explore how technology can support collaborative documentation of these …

Transition and reflection in the use of health information: the case of pediatric bone marrow transplant caregivers

E Kaziunas, AG Buyuktur, J Jones, SW Choi… - Proceedings of the 18th …, 2015 - dl.acm.org
The impact of health information on caregivers is of increasing interest to HCI/CSCW in
designing systems to support the social and emotional dimensions of managing health …

Collaborative data work towards a caring democracy

A Meng, C DiSalvo, E Zegura - Proceedings of the ACM on Human …, 2019 - dl.acm.org
Researchers in human-centered computing have surfaced a feminist ethic of care in
interaction with technologies, in data collection, and in data work. Drawing on two years of …

Data Narratives: Uncovering tensions in personal data management

J Vertesi, J Kaye, SN Jarosewski… - Proceedings of the 19th …, 2016 - dl.acm.org
We present an interview study of 34 participants in the US and Korea who described how
they manage their personal data, from work files to family photos. Through their'data …

Human data interaction: historical lessons from social studies and CSCW

A Crabtree, R Mortier - ECSCW 2015: Proceedings of the 14th European …, 2015 - Springer
Abstract Human Data Interaction (HDI) is an emerging field of research that seeks to support
end-users in the day-to-day management of their personal digital data. This is a …