Background We aimed to synthesise data on issues related to stakeholder perceptions of
consent for the use of secondary data. To better understand the current literature available …

We aimed to synthesise data on issues related to stakeholder perceptions of privacy, trust,
and transparency in use of secondary data. A systematic literature review of healthcare …

Background: Use of patients' medical data for secondary purposes such as health research,
audit, and service planning is well established in the UK. However, the governance …

Introduction International sharing of health data opens the door to the study of the so-called
'Big Data', which holds great promise for improving patient-centred care. Failure of recent …

Introduction Sharing of health data for secondary uses such as research and public policy
development is common. There are many potential benefits, but also risks if information …

A systematic literature review of researchers and healthcare professionals' attitudes towards
the secondary use and sharing of health administrative and clinical trial data was conducted …

Objectives Data sharing is well established in biological research, but evidence on sharing
of clinical trial or public health research study data remains limited, in particular studies of …

Introduction: Variation across research ethics boards (REBs) in conditions placed on access
to medical records for research purposes raises concerns around negative impacts on …

Background The past 10 years have witnessed a significant growth in sharing of health data
for secondary uses. Alongside this there has been growing interest in the public …

The predominant view is that a study using health data is observational research and should
require individual consent unless it can be shown that gaining consent is impractical. But …