ramya M. rajagopalan a, b, Julie Cakici a, c and Cinnamon S. Bloss a, b aherbert Wertheim
school of public health and human longevity science, Uc san Diego, la Jolla, UsA; bcenter …

Background Researchers engaged in the study of the ethical, legal, and social implications
(ELSI) of genetics and genomics are often publicly funded and intend their work to be in the …

Organizers of the Human Genome Project (HGP) understood from the beginning that the
scientific activities of mapping and sequencing the human genome would raise ethical …

Background: A growing literature has raised—skeptically—the question of whether cutting-
edge scientific research can identify and address broader ethical and policy considerations …

Research on the ethical, legal, and social implications (ELSI) of human genomics has
devoted significant attention to the research ethics issues that arise from genomic science as …

From its inception, genomics has been a speculative endeavor, fixated on a far-off horizon
that would deliver on the promise of targeted diagnostics and individualized therapeutics …

Federally funded research on the ethical, legal, and social implications (ELSI) of genomics
includes a programmatic charge to consider policy-relevant questions and to communicate …

Abstract The Ethical, Legal, and Social Implications (ELSI) Research Program of the
National Human Genome Research Institute sponsors research examining ethical, legal …

Abstract Background Genome scientists and Ethical, Legal, and Social Implications of
genetics (ELSI) scholars commonly inhabit distinct research cultures–utilizing different …

ELSI efforts long have been troubled by critiques that they privilege scientific frameworks
and grant scientists the power to set ethical agendas. As the first director of the Human …