[HTML][HTML] Public responses to the sharing and linkage of health data for research purposes: a systematic review and thematic synthesis of qualitative studies
Background The past 10 years have witnessed a significant growth in sharing of health data
for secondary uses. Alongside this there has been growing interest in the public …
for secondary uses. Alongside this there has been growing interest in the public …
Administrative record linkage as a tool for public health research
DP Jutte, LL Roos, MD Brownell - Annual review of public health, 2011 - annualreviews.org
Linked administrative databases offer a powerful resource for studying important public
health issues. Methods developed and implemented in several jurisdictions across the …
health issues. Methods developed and implemented in several jurisdictions across the …
Challenges in administrative data linkage for research
K Harron, C Dibben, J Boyd, A Hjern… - Big data & …, 2017 - journals.sagepub.com
Linkage of population-based administrative data is a valuable tool for combining detailed
individual-level information from different sources for research. While not a substitute for …
individual-level information from different sources for research. While not a substitute for …
[HTML][HTML] The role of administrative data in the big data revolution in social science research
The term big data is currently a buzzword in social science, however its precise meaning is
ambiguous. In this paper we focus on administrative data which is a distinctive form of big …
ambiguous. In this paper we focus on administrative data which is a distinctive form of big …
Diagnosed prevalence of Ehlers-Danlos syndrome and hypermobility spectrum disorder in Wales, UK: a national electronic cohort study and case–control comparison
Objectives To describe the epidemiology of diagnosed hypermobility spectrum disorder
(HSD) and Ehlers-Danlos syndromes (EDS) using linked electronic medical records. To …
(HSD) and Ehlers-Danlos syndromes (EDS) using linked electronic medical records. To …
Lifetime risk of undergoing surgery for pelvic organ prolapse
FJ Smith, CDAJ Holman, RE Moorin… - Obstetrics & …, 2010 - journals.lww.com
OBJECTIVE: To investigate the lifetime risk of first-time incident pelvic organ prolapse (POP)
surgery with the intention of updating previous risk estimates that have been based on …
surgery with the intention of updating previous risk estimates that have been based on …
UK phenomics platform for developing and validating electronic health record phenotypes: CALIBER
S Denaxas, A Gonzalez-Izquierdo… - Journal of the …, 2019 - academic.oup.com
Abstract Objective Electronic health records (EHRs) are a rich source of information on
human diseases, but the information is variably structured, fragmented, curated using …
human diseases, but the information is variably structured, fragmented, curated using …
[HTML][HTML] Depression as a modifiable factor to decrease the risk of dementia
Depression is an accepted risk factor for dementia, but it is unclear if this relationship is
causal. This study investigated whether dementia associated with depression decreases …
causal. This study investigated whether dementia associated with depression decreases …
Child maltreatment: variation in trends and policies in six developed countries
We explored trends in six developed countries in three types of indicators of child
maltreatment for children younger than 11 years, since the inception of modern child …
maltreatment for children younger than 11 years, since the inception of modern child …
Linking sensitive data
Sensitive personal data are created in many application domains, and there is now an
increasing demand to share, integrate, and link such data within and across organisations in …
increasing demand to share, integrate, and link such data within and across organisations in …