Pediatric palliative care: use of opioids for the management of pain
B Zernikow, E Michel, F Craig, BJ Anderson - Pediatric Drugs, 2009 - Springer
Pediatric palliative care (PPC) is provided to children experiencing life-limiting diseases
(LLD) or life-threatening diseases (LTD). Sixty to 90% of children with LLD/LTD undergoing …
(LLD) or life-threatening diseases (LTD). Sixty to 90% of children with LLD/LTD undergoing …
Instruments to measure outcomes in pediatric palliative care: a systematic review
M Friedel, I Aujoulat, AC Dubois, JM Degryse - Pediatrics, 2019 - publications.aap.org
OBJECTIVE: To review the instruments used to assess the impact of PPC interventions.
DATA SOURCES: Five databases (Embase, Scopus, The Cochrane Library, PsychInfo …
DATA SOURCES: Five databases (Embase, Scopus, The Cochrane Library, PsychInfo …
Supporting parent caregivers of children with life-limiting illness
The well-being of parents is essential to the well-being of children with life-limiting illness.
Parents are vulnerable to a range of negative financial, physical, and psychosocial issues …
Parents are vulnerable to a range of negative financial, physical, and psychosocial issues …
Pain care for patients with epidermolysis bullosa: best care practice guidelines
KR Goldschneider, J Good, E Harrop, C Liossi… - BMC medicine, 2014 - Springer
Background Inherited epidermolysis bullosa (EB) comprises a group of rare disorders that
have multi-system effects and patients present with a number of both acute and chronic pain …
have multi-system effects and patients present with a number of both acute and chronic pain …
[HTML][HTML] Mapping pediatric palliative care development in the WHO-European region: children living in low-to-middle-income countries are less likely to access it
N Arias-Casais, E Garralda, JJ Pons, J Marston… - Journal of pain and …, 2020 - Elsevier
Context Approximately 170,000 children in need of palliative care die every year in Europe
without access to it. This field remains an evolving specialty with unexplored development …
without access to it. This field remains an evolving specialty with unexplored development …
When parents face the death of their child: a nationwide cross-sectional survey of parental perspectives on their child's end-of life care
K Zimmermann, E Bergstraesser, S Engberg… - BMC palliative …, 2016 - Springer
Background Parents facing the death of their child have a strong need for compassionate
professional support. Care services should be based on empirical evidence, be sensitive to …
professional support. Care services should be based on empirical evidence, be sensitive to …
Children with life-limiting conditions in paediatric intensive care units: a national cohort, data linkage study
LK Fraser, R Parslow - Archives of Disease in Childhood, 2018 - adc.bmj.com
Objective To determine how many children are admitted to paediatric intensive care unit
(PICU) with life-limiting conditions (LLCs) and their outcomes. Design National cohort, data …
(PICU) with life-limiting conditions (LLCs) and their outcomes. Design National cohort, data …
Barriers and facilitators to the implementation of a paediatric palliative care team
LM Verberne, MC Kars, SA Schepers… - BMC Palliative Care, 2018 - Springer
Background Over the last decade, paediatric palliative care teams (PPCTs) have been
introduced to support children with life-limiting diseases and their families and to ensure …
introduced to support children with life-limiting diseases and their families and to ensure …
Did increased availability of pediatric palliative care lead to improved palliative care outcomes in children with cancer?
Background: Awareness for pediatric palliative care in children with cancer increased in the
last ten years in Germany. In this study we sought to determine whether this change in …
last ten years in Germany. In this study we sought to determine whether this change in …
Parental experiences with a paediatric palliative care team: a qualitative study
LM Verberne… - Palliative …, 2017 - journals.sagepub.com
Background: Parents of children with a life-limiting disease have to rely on themselves at
home while adequate paediatric palliative care is lacking. In several countries, paediatric …
home while adequate paediatric palliative care is lacking. In several countries, paediatric …