Improving Dementia Caregiver Activation with a Brief Communication Module

E Wittenberg, SS Sullivan… - American Journal of …, 2024 - journals.sagepub.com
Objective: Palliative care often plays a pivotal role in supporting informal caregivers of
persons living with dementia who experience a lack of continuity in care. Dementia …

“I Finally Feel Like I Have Help. Before, I Was Completely Alone”: A Grounded Theory of Community-Based Hospice Transitions

CM Mann, H Maciejewski… - Journal of Hospice & …, 2024 - journals.lww.com
Little is known about community-based transitions to home hospice care. We used a
Straussian grounded theory approach to understand the basic social process of care …

Identifying key domains and implementation challenges for a live discharge from hospice protocol

SP Wladkowski, S Enguídanos… - American Journal of …, 2023 - journals.sagepub.com
Background: Hospice agencies lack an explicit live discharge process to guide practitioners
in transitioning these patients and their primary caregivers (PCGs) out of hospice care …

Caregiver Experiences and Burden in Moderate-Advanced Dementia With Lewy Bodies

MJ Armstrong, Y Dai, K Sovich, B LaBarre… - Neurology: Clinical …, 2024 - AAN Enterprises
Background and Objectives Dementia with Lewy bodies (DLB) is a common degenerative
dementia, but research on caregiver experiences in late stages is lacking. This study aimed …

[HTML][HTML] Exploring communication challenges in dementia care: Insights from home healthcare nurses

E Wittenberg, C Mann, SS Sullivan - Patient Education and Counseling, 2025 - Elsevier
Objectives Care for people living with dementia predominantly takes place at home and is
often characterized by multiple hospitalizations throughout the lengthy disease trajectory …

[HTML][HTML] Caregivers' Burden and Anticipatory Grief Increases Acute Health Care Use in Older Adults with Severe Dementia

C Malhotra, I Chaudhry, SU Shah… - Journal of the American …, 2024 - Elsevier
Objectives To assess the bidirectional association of caregivers' burden and anticipatory
grief with acute health care use (inpatient or emergency admission) among older adults with …

Long‐term effects of collaborative dementia care on quality of life and caregiver well‐being

KL Possin, S Dulaney, AB Sideman… - Alzheimer's & …, 2024 - Wiley Online Library
INTRODUCTION Collaborative dementia care models with care navigation, including the
Care Ecosystem, improve outcomes for persons living with dementia (PLWDs) and their …