Supporting the health care transition from adolescence to adulthood in the medical home

PH White, WC Cooley, ADA Boudreau, M Cyr… - …, 2018 - publications.aap.org
Risk and vulnerability encompass many dimensions of the transition from adolescence to
adulthood. Transition from pediatric, parent-supervised health care to more independent …

Health care transitions among adolescents and young adults with cancer

MJ Ehrhardt, DN Friedman, MM Hudson - Journal of Clinical …, 2024 - ascopubs.org
Survivors of adolescent and young adult (AYA) cancers, defined as individuals diagnosed
with a primary malignancy between age 15 and 39 years, are a growing population with …

Neurofibromatosis type 1 (NF1): addressing the transition from pediatric to adult care

HB Radtke, A Berger, T Skelton… - … Health, Medicine and …, 2023 - Taylor & Francis
Health care transition, or HCT, is the process of adolescents and young adults moving from
a child/family-centered model of health care to an adult/patient-centered model of health …

Parental entrustment of healthcare responsibilities to youth with chronic conditions: A concept analysis

L Pitts, PA Patrician, W Landier, T Kazmerski… - Journal of Pediatric …, 2024 - Elsevier
Purpose Chronic health conditions impact nearly 40% of children in the United States,
necessitating parents/caregivers to entrust healthcare responsibilities to youth aging into …

Parents' Experiences and Perceptions of Healthcare Transition in Adolescents with Asthma: A Qualitative Study

H Rhee, L Batek, L Rew, L Tumiel-Berhalter - Children, 2023 - mdpi.com
Adolescence marks a significant transition from pediatric to adult healthcare, and parents
play critical roles in supporting their adolescents with chronic conditions through this …

Using a Transition Design Approach to Explore the Adolescent Shift to Adulthood

JT Jarrell, OM Stransky, J Frazier… - International …, 2024 - journals.sagepub.com
Transition to adulthood is a multi-faceted, complex process that affects all areas of an
adolescent's internal and external world. Prior methodologies to assess the medical facet of …

The roles and experiences of adolescents with cystic fibrosis and their parents during transition: A qualitative interview study

KV Wyngaert, S Debulpaep, W Van Biesen… - Journal of Cystic …, 2024 - Elsevier
Abstract Purpose Inadequate participation of Adolescents and Young Adults (AYAs) and
parents are well-established barriers of transition. Shifts in roles are mandatory with …

'And then there was silence': shaping practice through the experience of parents' emotions

S Levy - Journal of Research in Nursing, 2023 - journals.sagepub.com
Background: Spina bifida, the most common Neural Tube Defect occurring around 28 days
following conception, is often discovered in a routine ultrasound examination. Nurses offer …

Caregivers' Perspective on Successful Health Care Transition Outcomes for Adolescents and Young Adults With Special Health Care Needs

M Dave, C Betz, S Munce, P Parraga, S Shanske… - Journal of Adolescent …, 2024 - Elsevier
Purpose There is limited caregiver-reported evidence determining health care transition
(HCT) outcomes for their adolescents/young adults with special health care needs (AYA …

[HTML][HTML] Health care transition experiences of young adults with medical complexity

RG Cady, T Bahr, C Au-Yeung, S Kinoglu, M Lutz… - Health Care …, 2024 - Elsevier
Background Transition from pediatric to adult healthcare and services is an important event
in the life course of all youth, including youth living with medical complexity. Data from the …