Opportunities to enhance parental well-being during prenatal counseling for congenital heart disease

TA Tacy, NA Kasparian, R Karnik, M Geiger… - Seminars in …, 2022 - Elsevier
Prenatal diagnosis of congenital heart disease (CHD) can be a life-altering and traumatic
event for expectant parents. Parental anxiety, depression, and traumatic stress are common …

Topical review: crowdsourcing as a novel approach to qualitative research

E Sood, T Wysocki, MA Alderfer, K Aroian… - Journal of pediatric …, 2021 - academic.oup.com
Objective To describe a novel, five-phase approach to collecting qualitative data from hard-
to-reach populations using crowdsourcing methods. Methods Drawing from experiences …

Parental post-traumatic stress, overprotective parenting, and emotional and behavioural problems for children with critical congenital heart disease

LG McWhorter, J Christofferson, T Neely… - Cardiology in the …, 2022 - cambridge.org
Objective: To examine relationships amongst parental post-traumatic stress symptoms,
parental post-traumatic growth, overprotective parenting, and child emotional/behavioural …

Role alteration predicts anxiety and depressive symptoms in parents of infants with congenital heart disease: a pilot study

AJ Lisanti, A Kumar, R Quinn, JL Chittams… - Cardiology in the …, 2021 - cambridge.org
Background: Parents of infants born with critical congenital heart disease are at risk for
adverse mental health symptoms. The purpose of this study was to identify infant-, parent …

Virtually delivered psychosocial intervention for prenatally diagnosed congenital heart disease: Feasibility and acceptability of HEARTPrep

E Sood, SN Nees, S Srivastava, S Ng, C Torres… - Pediatric …, 2023 - Springer
Prenatal diagnosis of congenital heart disease (CHD) often leads to anxiety, depression,
and traumatic stress in expectant mothers, with long-term implications for the child and …

Parent mental health and family functioning following diagnosis of CHD: A research agenda and recommendations from the Cardiac Neurodevelopmental Outcome …

E Sood, AJ Lisanti, SE Woolf-King, J Wray… - Cardiology in the …, 2021 - cambridge.org
Diagnosis of CHD substantially affects parent mental health and family functioning, thereby
influencing child neurodevelopmental and psychosocial outcomes. Recognition of the need …

Anxiety and depression levels in parents after counselling for fetal heart disease

GS Erbas, C Herrmann-Lingen, E Ostermayer… - Journal of Clinical …, 2023 - mdpi.com
The progress in fetal cardiology allows for the early diagnosis of congenital heart defects,
but there is still a lack of data on the psychological situation of parents expecting a child with …

Parental role alteration strongly influences depressive symptoms in mothers of preoperative infants with congenital heart disease

AJ Lisanti, AC Demianczyk, K Vaughan, GF Martino… - Heart & Lung, 2021 - Elsevier
Background Mothers of infants with congenital heart disease are at risk for depression.
Objectives This study explored the influence on maternal depressive symptoms of several …

Meeting parents' needs for education and preparation following congenital heart disease diagnosis: recommendations from a crowdsourced study

C Gramszlo, A Karpyn, J Christofferson… - American Journal of …, 2022 - thieme-connect.com
Objective This article characterizes the educational needs of parents following fetal or
neonatal congenital heart disease (CHD) diagnosis and generates recommendations for …

Toxic stress as a potential factor inducing negative emotions in parents of newborns and infants with cyanotic congenital heart disease

G Cepuch, A Kruszecka-Krówka, A Lalik, A Micek - Children, 2023 - mdpi.com
Background: Parents who have a newborn with a congenital heart defect experience
negative emotions, which may determine the emotional state of their children. Methods: The …