Duchenne muscular dystrophy is a severe, progressive, muscle-wasting disease that leads
to difficulties with movement and, eventually, to the need for assisted ventilation and …

Objective: to identify and analyze the evidence available regarding evaluation of burden and
quality of life of mothers who are caregivers for children and adolescents with chronic …

INTRODUCTION Clinical context and need for a guideline Neuromuscular diseases as a
group are relatively common with a prevalence of about 1 in 3000. The majority of these …

The positive outcome of different therapeutic approaches for spinal muscular atrophy (SMA)
in clinical trials and in clinical practice have highlighted the need to establish if functional …

Objetivo: identificar e analisar as evidências disponíveis sobre avaliação de sobrecarga e
qualidade de vida de mães cuidadoras de crianças e adolescentes com doença crônica …

This study was performed to examine the reliability and validity of the Turkish version of
ABILHAND-Kids questionnaire which assesses manual functions of children with …

Objectives This review synthesizes recent research on resilience in those who care for a
family member with Duchenne muscular dystrophy, identifying the challenges and potential …

This study measured health-related quality of life (HRQOL) in children with developmental
coordination disorder (DCD) and their parents. A convenience sample of 369 children with …

Background context The functional level of children with progressive neuromuscular disease
is a major factor that affects the quality of life (QOL) of parents. However, only a few …

This study aims to assess the family functioning and health-related quality of life (HRQOL) in
Chinese boys with Duchenne muscular dystrophy (DMD) and their parents using Pediatric …