What guidance exists to support patient partner compensation practices? A scoping review of available policies and guidelines

G Fox, DA Fergusson, A Sadeknury… - Health …, 2024 - Wiley Online Library
Background An integral aspect of patient engagement in research, also known as patient
and public involvement, is appropriately recognising patient partners for their contributions …

Innovative Program to Prevent Pediatric Chronic Postsurgical Pain: Patient Partner Feedback on Intervention Development

D Ruskin, K Szczech, J Tyrrell, L Isaac - Healthcare, 2024 - mdpi.com
Background: The risk of developing chronic postsurgical pain (CPSP) in youth is related to
psychological factors, including preoperative anxiety, depression, patient/caregiver pain …

Meaningful Patient Engagement in Adolescent and Young Adult (AYA) Cancer Research: A Framework for Qualitative Studies

N Oveisi, V Cheng, D Taylor, H Bechthold, M Barnes… - Current …, 2024 - mdpi.com
Over the last two decades, patient engagement in cancer research has evolved significantly,
especially in addressing the unique challenges faced by adolescent and young adult (AYA) …

Community-based participatory-research through co-design: supporting collaboration from all sides of disability

C Benz, W Scott-Jeffs, KA McKercher, M Welsh… - Research Involvement …, 2024 - Springer
Background As co-design and community-based participatory research gain traction in
health and disability, the challenges and benefits of collaboratively conducting research …

[HTML][HTML] Advancing Research Alongside Patient Partners: Next-Generation Best Practices for Effective Collaboration in Health Research

AC Farrell, JA Lawson… - Current …, 2024 - mdpi.com
Ovarian Cancer Canada's Patient Partners in Research (PPiR) is a national volunteer-based
program that trains and connects individuals with lived ovarian cancer (OC) experience to …

[HTML][HTML] Exploring Patient Viewpoints to Optimize Implementation of a Biological Therapy for Atrial Fibrillation Prevention

C Smith, MM Lalu, DR Davis - CJC Open, 2024 - Elsevier
Background Embracing patient viewpoints can enhance the translation of novel therapeutics
to clinical settings. This study evaluated the acceptability of using extracellular vesicles …

Care Needs of Patients with Chronic Cardiovascular Diseases from the Perspective of Nurses: A Qualitative Study.

MN Foodani, ZA Dolatabadi… - Journal of Nursing …, 2024 - search.ebscohost.com
Abstract Background: Chronic cardiovascular diseases (CVDs) are a leading cause of death
globally, making it essential to understand the comprehensive care needs of individuals …

Entwicklung einer Checkliste zur Patient* innenbeteiligung in der Forschung–Eine qualitative Studie innerhalb eines Graduiertenkollegs zum Thema Depression

AFJ Di Meo, F Gökce, L Pfeiffer, C Teusen… - Das …, 2024 - thieme-connect.com
Hintergrund und Zielsetzung: Die Integration der Patient* innenperspektive in
Forschungsprojekten ist essenziell, um die Relevanz und Qualität von …

[HTML][HTML] Care Needs of Patients with Chronic Cardiovascular Diseases from the Perspective of Nurses with the Same Condition: A Qualitative Study

MN Foodani, ZA Dolatabadi, S Ghiyasvandian… - Journal of Nursing and … - brieflands.com
Background: Chronic cardiovascular diseases (CVDs) are a leading cause of death globally,
making it essential to understand the comprehensive care needs of individuals living with …