Biobanks need publicity

G Gaskell, H Gottweis - Nature, 2011 - nature.com
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Constructing populations in biobanking

A Tupasela, K Snell, JA Cañada - Life sciences, society and policy, 2015 - Springer
This article poses the question of whether biobanking practices and standards are giving
rise to the construction of populations from which various biobanking initiatives increasingly …

National interests and international collaboration: tensions and ambiguity among Finns towards usages of tissue samples

A Tupasela, K Snell - New Genetics and Society, 2012 - Taylor & Francis
Recent trends in biobanking indicate that the practices associated with the collection and
use of human tissue samples and related health information are increasingly becoming …

Genome Finland: From rare diseases to data economy

I Helén, K Snell, H Tarkkala, A Tupasela - 2024 - library.oapen.org
Genome Finland tells a story of genomic medicine in Finland from the study of rare Finnish
diseases in the 1960s and 1970s to the implementation of personalized medicine in the …

Finnish people's attitudes towards biomedical research and its sponsorship

E Hemminki, A Tupasela, P Jallinoja, AR Aro… - Genomics, Society and …, 2009 - Springer
The purpose of the research was to study Finnish people's attitudes towards biomedical
research and whether the research sponsor makes a difference to those attitudes. A survey …

[PDF][PDF] Social responsibility in developing new biotechnology: Interpretations of responsibility in the governance of Finnish biotechnology

K Snell - 2009 - helda.helsinki.fi
Table 6. Role of people interviewed. 52 Table 7. Field of people interviewed. 52 Table 8.
Four categories of responsibility and their relation to the two social dimensions of …

Governing risk through informed choice: Prenatal testing in welfarist maternity care

M Meskus - Contested Categories, 2016 - taylorfrancis.com
This chapter discusses three'translations' in medical rationalizations, related to discussions
and practical implementations of prenatal testing from the beginning of 1980s until the first …

Elämän politiikka biologisen muokattavuuden aikakaudella: ensimmäinen kartoitus

I Helén - Sosiologia, 2013 - journal.fi
Nikolas Rosen ja Paul Rabinowin mukaan biopolitiikka on muuntunut molekulaariseksi
politiikaksi, kun bioteknologian kehitys vuosituhannen vaihteessa on tuonut elämän …

When death enables life: incorporation of organs from deceased donors in Finnish kidney recipients

S Ådahl - Mortality, 2013 - Taylor & Francis
Anthropological and sociological studies of organ transplantation practices have pointed to
the ambiguities that are created by the use of deceased donors for organ procurement …

'I Was a Model Student': Illness Knowledge Seeking and Self-care Among Finnish Kidney Recipients

S Ådahl - Culture Unbound, 2012 - cultureunbound.ep.liu.se
The customer based ideology currently in use in the Finnish welfare state, as elsewhere, has
transformed health care. Responsibility for health, that used to be lodged within society, has …