Young people's advisory groups in health research: scoping review and mapping of practices
E Sellars, G Pavarini, D Michelson… - Archives of disease in …, 2021 - adc.bmj.com
Background Young people's advisory groups (YPAGs) for research are comprised of
children or adolescents who work with researchers to shape different stages of the research …
children or adolescents who work with researchers to shape different stages of the research …
Safety, dosing, and pharmaceutical quality for studies that evaluate medicinal products (including biological products) in neonates
The study of medications among pediatric patients has increased worldwide since 1997 in
response to new legislation and regulations, but these studies have not yet adequately …
response to new legislation and regulations, but these studies have not yet adequately …
The ethics of research with children and young people: A practical handbook
P Alderson, V Morrow - 2020 - torrossa.com
Untitled Page 1 Page 2 The Ethics of Research with Children and Young People Page 3 Sara
Miller McCune founded SAGE Publishing in 1965 to support the dissemination of usable …
Miller McCune founded SAGE Publishing in 1965 to support the dissemination of usable …
Co‐producing research with youth: the NeurOx young people's advisory group model
Abstract Context The 1989 UN Convention on the Rights of the Child states that children
have the right to be heard in all matters affecting them. The Convention inspired a surge in …
have the right to be heard in all matters affecting them. The Convention inspired a surge in …
Involving children and young people in clinical research through the forum of a European Young Persons' Advisory Group: needs and challenges
S Gaillard, S Malik, J Preston… - Fundamental & …, 2018 - Wiley Online Library
Children and young people are seen as fundamental to the design and delivery of clinical
research as active and reflective participants. In Europe, involvement of children and young …
research as active and reflective participants. In Europe, involvement of children and young …
A decade of efforts to add value to child health research practices
Objective To identify practices that add value to improve the design, conduct, and reporting
of child health research and reduce research waste. Study design In order to categorize the …
of child health research and reduce research waste. Study design In order to categorize the …
Improvement of pediatric drug development: regulatory and practical frameworks
K Tsukamoto, KA Carroll, T Onishi, N Matsumaru… - Clinical …, 2016 - Elsevier
Purpose A dearth in pediatric drug development often leaves pediatricians with no
alternative but to prescribe unlicensed or off-label drugs with a resultant increased risk of …
alternative but to prescribe unlicensed or off-label drugs with a resultant increased risk of …
A novel way to engage youth in research: evaluation of a participatory health research project by the international children's advisory network youth council
VWL Tsang, S Fletcher, C Thompson… - International Journal of …, 2020 - Taylor & Francis
Background: Little is known about the impact of a participatory approach in adolescent
health research and the specific benefits youth derive from such experiences. This study …
health research and the specific benefits youth derive from such experiences. This study …
Role of patients and parents in pediatric drug development
Patient engagement in health care has been an emerging priority in the global effort and
move toward the consideration of patients as experts of their own conditions. However, the …
move toward the consideration of patients as experts of their own conditions. However, the …
Ethics committees, journal publication and research with children
E Robson - Children's geographies, 2018 - Taylor & Francis
Stepping down from co-editing Children's Geographies and at about the same time taken up
a new role as founding chair of the Research and Evaluation Ethics Committee for Save the …
a new role as founding chair of the Research and Evaluation Ethics Committee for Save the …