A multi-site pilot study of a parent-centered tool to promote shared decision-making in hypospadias care

KE Binion, AU Rode, G Nortey, AD Miller… - Journal of pediatric …, 2023 - Elsevier
Background Using a user-centered design approach, we conducted a two-site pilot study to
evaluate a decision aid (DA) website, the Hypospadias Hub, for parents of hypospadias …

Co-creating a suite of patient decision aids for parents of an infant or young child with differences of sex development: A methods roadmap

S Lightfoot, M Carley, W Brinkman, MD Gardner… - Frontiers in …, 2023 - frontiersin.org
Introduction Parents and guardians of infants and young children with differences of sex
development (DSD) often face numerous health and social decisions about their child's …

Understanding health-related quality of life after hypospadias repair: A qualitative study with pre-adolescent males and parents

V Bhatia, S Cannon, AN Patel, HW Brown… - Journal of Pediatric …, 2024 - Elsevier
Introduction Hypospadias is a common disease that affects approximately 1 in every 200 live
male births in the United States, and long-term studies of individuals who have undergone …

Patient information video: How to take care of your child after hypospadias surgery?

C Berquin, C Jamaer, L Van Moerkerke… - Journal of Pediatric …, 2023 - Elsevier
Introduction Patient/parent education and participation helps improve post-operative care.
Dressing and catheter care after hypospadias surgery varies widely and young parents are …

A multi-site cultural and linguistic adaptation of a hypospadias decision aid for Latinx communities

KE Binion, KM Perreira, LV Torres, JT White… - Journal of Pediatric …, 2024 - Elsevier
Summary Introduction Latinx, Spanish-speaking (LSS) patients are more likely to experience
decisional conflict and regret about healthcare decisions than non-Hispanic, white, English …

Cleft-Related Revision Procedures: Surgeon Perspectives on Shared Decision-Making and a Decision Aid Prototype

KG Makar, KD Tran, W Brown… - The Cleft Palate …, 2025 - journals.sagepub.com
Objective Decision-making for elective cleft lip and nose revisions varies widely, from patient-
led decisions to more paternalistic approaches. As these procedures incur additional …

Inter‐disciplinary provider development of an online, interactive adolescent varicocele decision aid prototype

AR Siegal, FA Ferrer, CDA Herndon, MC Wallis… - …, 2024 - Wiley Online Library
Background Decision‐making regarding varicocele management can be a complex process
for patients and families. However, to date, no studies have presented ways to mitigate the …

Advancements in Hypospadias Management: Trends, Techniques, Training, and Patient-Centric Outcomes.

V Bhatia, N Fernandez, C Long… - Urology Research & …, 2024 - search.ebscohost.com
Hypospadias has drawn increasing attention due to its prevalence, complex etiology, and
significant impacts on psychological and sexual quality of life. This comprehensive review …

Development of a Theory-Informed Patient Decision Aid to Facilitate Consent to Genetic Testing in the Neonatal Intensive Care Unit

K Higley - 2024 - scholarworks.iupui.edu
Genetic testing is an essential diagnostic tool in the neonatal intensive care unit (NICU) that
can shorten infants' stays, improve accuracy and effectiveness of medical care, and overall …

Decision making in hypospadias and complications: The elephant in the hypospadias room

H Mosa - Journal of Pediatric Urology, 2023 - jpurol.com
Decision making in hypospadias and complications: The elephant in the hypospadias room -
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