Patient‐reported outcomes in childhood head and neck rhabdomyosarcoma survivors and their relation to physician‐graded adverse events—a multicenter study …

M Morfouace, MLF Hol, RA Schoot, O Slater… - Cancer …, 2023 - Wiley Online Library
Introduction Adverse events (AE) of treatment are prevalent and diverse in head and neck
rhabdomyosarcoma (HNRMS) survivors. These AEs are often reported by physicians; …

[HTML][HTML] FACE-Q craniofacial module: Part 2 Psychometric properties of newly developed scales for children and young adults with facial conditions

AF Klassen, C Rae, W Riff, R Denadai… - Journal of Plastic …, 2021 - Elsevier
Summary Background The FACE-Q Craniofacial Module is a patient-reported outcome
measure designed for patients aged 8 to 29 years with conditions associated with a facial …

Finnish Translation and linguistic validation of the CLEFT-Q questionnaire

M Westerlund, A Heliövaara… - The Cleft Palate …, 2024 - journals.sagepub.com
Objective Cleft lip and/or palate (CL/P) can have long-lasting effects on the appearance,
function, and psychosocial wellbeing of patients. The CLEFT-Q questionnaire is a patient …

[HTML][HTML] The development, deployment, and evaluation of the CLEFT-Q Computerized Adaptive Test: a multimethods approach contributing to personalized, person …

C Harrison, I Apon, K Ardouin, C Sidey-Gibbons… - Journal of medical …, 2023 - jmir.org
Background Routine use of patient-reported outcome measures (PROMs) and computerized
adaptive tests (CATs) may improve care in a range of surgical conditions. However, most …

An international study to develop the EAR-Q patient-reported outcome measure for children and young adults with ear conditions

AF Klassen, C Rae, NW Bulstrode, B Berenguer… - Journal of Plastic …, 2021 - Elsevier
Background There is currently a lack of patient-reported outcome measures for ear
reconstruction. We developed the EAR-Q to measure ear appearance and post-operative …

Oral health-related quality of life in patients with oligodontia: A FACE-Q assessment

M Aarts, S Mettenberger, EM Bronkhorst… - Journal of Dentistry, 2023 - Elsevier
Objectives The present study aimed to investigate the impact of oligodontia on appearance
and on the functional and psychosocial aspects of oral health-related quality of life (OHrQoL) …

[HTML][HTML] Objective and subjective evaluation of the efficacy of trans-sutural distraction osteogenesis: A correlation analysis between computed tomography …

Z Lin, Y Chen, P Zhang, M Jin, G Wang… - Journal of Cranio …, 2024 - Elsevier
Previous studies on the efficacy of trans-sutural distraction osteogenesis (TSDO) to treat
midface hypoplasia caused by cleft lip and palate (CLP) have mainly focused on objective …

Establishing Reliability and Validity of the FACE-Q Craniofacial Module for Pediatric Head and Neck Cancer

Y Wang, C Rae, E Tsangaris, PC Nathan… - Journal of Adolescent …, 2024 - liebertpub.com
Purpose: We aimed to establish content validity and assess the psychometric properties of
the FACE-Q Craniofacial Module, a patient-reported outcome measure, for use in pediatric …

Comparative Analysis of Patient-reported Outcomes After Cranial Vault Remodeling and Strip Craniectomy With the FACE-Q Craniofacial Module

MA Bello, PF Mercho, S Gupta, M Shirrell… - Journal of …, 2024 - journals.lww.com
Background: The debate continues among craniofacial surgeons regarding the
effectiveness of strip craniectomy (SC) compared with cranial vault remodeling (CVR) in …

Development and Validation of the Jawline Subject Satisfaction Scale

KM Enright, JS Sampalis, A Andriessen… - Plastic …, 2024 - journals.sagepub.com
Introduction: Research in aesthetic medicine commonly includes evaluations of subject
satisfaction with treatment results. However, conventional analytic methods typically …