[HTML][HTML] Effects of rare kidney diseases on kidney failure: a longitudinal analysis of the UK National Registry of Rare Kidney Diseases (RaDaR) cohort

K Wong, D Pitcher, F Braddon, L Downward… - The Lancet, 2024 - thelancet.com
Background Individuals with rare kidney diseases account for 5–10% of people with chronic
kidney disease, but constitute more than 25% of patients receiving kidney replacement …

Quantifying association of early proteinuria and eGFR changes with long-term kidney failure hazard in C3G and IC-MPGN

S Masoud, K Wong, D Pitcher, L Downward… - medRxiv, 2024 - medrxiv.org
Abstract Background C3 glomerulopathy (C3G) and immune-complex
membranoproliferative glomerulonephritis (IC-MPGN) are rare disorders that frequently …

[HTML][HTML] Systematic scoping review of socioeconomic burden and associated psychosocial impact in patients with rare kidney diseases and their caregivers

A Palagyi, A Sengupta, M Moorthy, C Malik… - Kidney International …, 2024 - Elsevier
Introduction Rare kidney diseases constitute a significant public health challenge but have
attracted limited research investment. The evidence around the socio-economic burden of …