The Nordic countries aim to have a unique place within the European and global health data
economy. They have extensive nationally maintained and centralized health data records …

The administrative reform of the datafied public administration places great emphasis on the
classification, control, and prediction of citizen behavior and therefore has the potential to …

Biotechnology is developing at an ever-increasing pace, and the progressive
computerization of health care and research is making it increasingly easy to share data …

Nordic welfare states have well institutionalised practises of gathering health and social
wellbeing data from their citizens. The establishment of population registers coincided with …

Background: Biobanking practice continues to proliferate in South Africa, yet little is known
about how stakeholders engage with social, cultural, and religious considerations in this …

Objectives Denmark has invested a lot in the branding of its health data landscape as a role
model. We explored to which extent this holds true, with a focus on data access for …

Background Public awareness and engagement are among the main prerequisites for
protecting the rights of research participants and for successful and sustainable functioning …

Understanding how teaching affects students' attitudes and beliefs is notoriously difficult,
specifically in a quickly evolving and societally relevant field such as genetics. The aim of …

Data repositories, like research biobanks, seek to optimise the number of responding
participants while simultaneously attempting to increase the amount of data donated per …

Science and science policy are characterised by expectations. These expectations—as in
the field of biomedicine—may be related to describing novel findings, their use in curing …