Update on recent advances in amyotrophic lateral sclerosis

N Riva, T Domi, L Pozzi, C Lunetta, P Schito… - Journal of …, 2024 - Springer
In the last few years, our understanding of disease molecular mechanisms underpinning
ALS has advanced greatly, allowing the first steps in translating into clinical practice novel …

Learning Experiences of Future Healthcare Support Workers Enrolled in a Dual Mode Vocational Training Programme

MD Ruiz-Fernández, I Gámez-Vargas… - Healthcare, 2023 - mdpi.com
Background: With life expectancy increasing, there is a growing need to train healthcare
support workers who provide care for dependent people in healthcare centres and at home …

“Before I came to the hospice, I had nobody”. A qualitative exploration of what patients, family-caregivers, clinicians and volunteers valued most about home, day …

NM Hughes, J Noyes, C Stringer… - Palliative Care and …, 2024 - journals.sagepub.com
Background: Globally, the demand for hospice care continues to grow resulting in
substantial resource burden. Whilst some countries are able to rely on fixed government …

Overall survival of homebound patients without cancer receiving inpatient respite care in a hospital ward in Japan: a retrospective observational study

H Miura, Y Goto - BMJ open, 2024 - bmjopen.bmj.com
Objectives This study aimed to investigate the relationship between the use of inpatient
respite care and the overall survival of homebound patients without cancer admitted to a …

Resilience in caregiving in neurodegenerative disease complexities

S Harsha, JM Syed, SH Chalasani, M Ramesh… - The Neurodegeneration …, 2025 - Elsevier
Neurodegenerative diseases pose significant challenges to both patients and caregivers.
This chapter explores the complex role of caregivers, highlighting their daily responsibilities …

[HTML][HTML] Understanding the psychological well-being of patients with locked-in syndrome: a scoping review

H Yoshiki, N Morimoto, KY Urayama - Cureus, 2023 - ncbi.nlm.nih.gov
Locked-in syndrome (LiS) is a neurological disorder caused by lesions affecting the ventral
pons and midbrain and is characterized by loss of physical function, but with perceived …

[PDF][PDF] I sjukdomens närvaro: En litteraturöversikt om personers upplevelser av att leva med Amyotrofisk lateral skleros

A Wikberg, M Wiklund - 2024 - diva-portal.org
Bakgrund: Varje år diagnostiseras 220–250 personer med amyotrofisk lateral skleros i
Sverige. ALS är en obotlig neurodegenerativ sjukdom där muskelfunktionen succesivt bryts …

Informella vårdgivares upplevelser av att vårda en närstående med ALS: En litteraturstudie

E Andersson, M Eliasson - 2023 - diva-portal.org
Bakgrund: ALS är en obotlig neurodegenerativ sjukdom som bryter ned motoriska
nervceller. Skelettmuskulatur försvagas och övergår i förlamning. Dödsorsaken är ofta …

Personers upplevelser av att leva med sjukdomen ALS: En deskriptiv litteraturstudie

M Andersson, S Bengtsson - 2024 - diva-portal.org
Bakgrund: Amyotrofisk lateralskleros (ALS) är en progressiv och dödlig sjukdom som
orsakar att motorneuronen i hjärna och ryggmärg bryts ner, vilket leder till muskelförtvining …

[PDF][PDF] Understanding the Psychological Well-being of Patients With Locked-in Syndrome: A Scoping

H Yoshiki, N Morimoto, KY Urayama - 2023 - suicideinfo.ca
Locked-in syndrome (LiS) is a neurological disorder caused by lesions affecting the ventral
pons and midbrain and is characterized by loss of physical function, but with perceived …