Rules for processing genetic data for research purposes in view of the new EU General Data Protection Regulation

M Shabani, P Borry - European Journal of Human Genetics, 2018 - nature.com
Genetic data contain sensitive health and non-health-related information about the
individuals and their family members. Therefore, adopting adequate privacy safeguards is …

Privacy-preserving data sharing infrastructures for medical research: systematization and comparison

FN Wirth, T Meurers, M Johns, F Prasser - BMC Medical Informatics and …, 2021 - Springer
Background Data sharing is considered a crucial part of modern medical research.
Unfortunately, despite its advantages, it often faces obstacles, especially data privacy …

Specific measures for data-intensive health research without consent: a systematic review of soft law instruments and academic literature

JAR Smit, M Mostert, R van der Graaf… - European Journal of …, 2024 - nature.com
It is a common misunderstanding of current European data protection law that when consent
is not being used as lawful basis, the processing of personal data is prohibited. Article 9 …

EasySMPC: a simple but powerful no-code tool for practical secure multiparty computation

FN Wirth, T Kussel, A Müller, K Hamacher, F Prasser - BMC bioinformatics, 2022 - Springer
Background Modern biomedical research is data-driven and relies heavily on the re-use and
sharing of data. Biomedical data, however, is subject to strict data protection requirements …

Open science and data sharing in trauma research: Developing a trauma-informed protocol for archiving sensitive qualitative data.

R Campbell, R Goodman-Williams… - … , practice, and policy, 2023 - psycnet.apa.org
Objective: The open science movement seeks to make research more transparent, and to
that end, researchers are increasingly expected or required to archive their data in national …

The challenges of the expanded availability of genomic information: an agenda-setting paper

P Borry, HB Bentzen, I Budin-Ljøsne, MC Cornel… - Journal of community …, 2018 - Springer
Rapid advances in microarray and sequencing technologies are making genotyping and
genome sequencing more affordable and readily available. There is an expectation that …

Confidentiality

J Bos, J Bos - Research ethics for students in the social sciences, 2020 - Springer
After Reading This Chapter, You Will: Know what confidentiality entails and why it is
important in research Become familiar with techniques of securing confidentiality …

[PDF][PDF] Attitude of students towards the use of library facilities: a case study

J Alokluk - International Journal of Humanities, Social Sciences …, 2020 - academia.edu
Information is the most powerful tool in learning endeavours. Libraries are collections of
information in organised ways to make it accessible to the target audience. The main …

[图书][B] Social media strategies for increasing sales

L Ezeife - 2017 - search.proquest.com
Social media have transformed business commerce and consumer communication, yet
organizational leaders lack clear strategies for using social media platforms to their …

Enabling Open Science in Medicine Through Data Sharing: An Overview and Assessment of Common Approaches from the European Perspective

HA Attieh, A Haber, FN Wirth, B Buchner, F Prasser - J. Open Access L., 2023 - HeinOnline
Open Science involves the sharing of knowledge and data as well as the exchange of
research results. This is particularly important in the biomedical field, as it can foster …