Context Fathers' contributions to the management of long‐term childhood medical
conditions are under‐represented in the literature; therefore, the full extent of their …

Children with complex chronic conditions (CCC) need extensive, costly care, usually
provided at home by parents. These children often rely on technology to survive or avoid …

Highlights•Explicit and implicit hospital rules may impact delivery of patient and family-
centered care (PFCC).•Nurses have dual roles: they must both enforce rules and deliver …

Background Parents of children with complex, chronic conditions report a desire for
continuity of care, but relatively little is known about the ways in which nursing continuity of …

Purpose The purpose of this qualitative study was to describe the family experience of
caring for their child with a tracheostomy due to a compromised airway during the transition …

This descriptive study examined the relationship between home-care nursing support, sleep,
and daytime functioning in familial caregivers of ventilator-assisted children. Thirty-six …

Background Complex feeding difficulties requiring enteral (tube) feeding affect everyone
around the child. Parents experience additional stress and are at risk of social isolation. This …

Background Communication is a fundamental part of health care, but can be more difficult
with disabled children. Disabled children are more frequently admitted to hospital than other …

The philosophy of family-centered care in neonatal intensive care units is intended to
facilitate parental involvement, shared decision-making, and improved outcomes for infants …

This qualitative phenomenological study explored mothers' experiences of caring for a child
with complex needs. After ethical approval was obtained, data were collected through 11 …