Electronic consenting for conducting research remotely: A review of current practice and key recommendations for using e-consenting

E Skelton, N Drey, M Rutherford, S Ayers… - International journal of …, 2020 - Elsevier
Background Electronic approaches are becoming more widely used to obtain informed
consent for research participation. Electronic consent (e-consent) provides an accessible …

[HTML][HTML] Patient perspectives and preferences for consent in the digital health context: State-of-the-art literature review

I Kassam, D Ilkina, J Kemp, H Roble… - Journal of medical …, 2023 - jmir.org
Background The increasing integration of digital health tools into care may result in a greater
flow of personal health information (PHI) between patients and providers. Although privacy …

A REDCap-based model for electronic consent (eConsent): moving toward a more personalized consent

CE Lawrence, L Dunkel, M McEver, T Israel… - Journal of clinical and …, 2020 - cambridge.org
Introduction: The updated common rule, for human subjects research, requires that consents
“begin with a 'concise and focused'presentation of the key information that will most likely …

Early Check: translational science at the intersection of public health and newborn screening

DB Bailey, LM Gehtland, MA Lewis, H Peay, M Raspa… - BMC pediatrics, 2019 - Springer
Background Newborn screening (NBS) occupies a unique space at the intersection of
translational science and public health. As the only truly population-based public health …

A scoping review on how to make hospitals health literate healthcare organizations

P Zanobini, C Lorini, A Baldasseroni… - International Journal of …, 2020 - mdpi.com
The concept of health literacy is increasingly being recognised as not just an individual trait,
but also as a characteristic related to families, communities, and organisations providing …

Challenges and Possible Solutions to Adapting to Virtual Recruitment: Lessons Learned from a Survey Study during the Covid‐19 Pandemic

KE Cooksey, J Mozersky, J DuBois… - Ethics & human …, 2022 - Wiley Online Library
The Covid‐19 pandemic required rapid changes to research protocols, including immediate
transitions to recruiting research participants and conducting the informed consent process …

Personalized and longitudinal electronic informed consent in clinical trials: How to move the needle?

E De Sutter, L Barbier, P Borry, D Geerts… - Digital …, 2024 - journals.sagepub.com
Changes in the clinical trials landscape have been driven by advancements in digital
technology. The use of electronic informed consent to inform research participants and to …

[HTML][HTML] Unraveling the Role of Maternal Serum Ferritin Levels in Preterm Delivery: A Comprehensive Review

A Dande, S Pajai, A Gupta, S Dande, N Sethi - Cureus, 2024 - ncbi.nlm.nih.gov
Preterm delivery remains a critical global health concern, with numerous adverse
consequences for both neonate and healthcare systems. Understanding the relationship …

[HTML][HTML] Comparison of the Response to an Electronic Versus a Traditional Informed Consent Procedure in Terms of Clinical Patient Characteristics: Observational …

AGM Zondag, MJ Hollestelle, R van der Graaf… - Journal of Medical …, 2024 - jmir.org
Background Electronic informed consent (eIC) is increasingly used in clinical research due
to several benefits including increased enrollment and improved efficiency. Within a learning …

Adaptation of metabolomics and microbiomic research protocols during the COVID-19 pandemic

B Butts, T Alford, G Brewster, N Carlson… - Nursing …, 2022 - journals.lww.com
Background When the COVID-19 pandemic hit in 2020, researchers in the P30 Center for
the Study of Symptom Science, Metabolomics, and Multiple Chronic Conditions at Emory …