Routine use of patient-reported experience and outcome measures for children and young people: a scoping review

A Alarilla, K Terrell, P Kelly, H Chesters, F Gibson… - Systematic …, 2024 - Springer
Background Patient-reported outcome measures (PROMs) measure people's views of their
health status whereas patient-reported experience measures (PREMs) are questionnaires …

[HTML][HTML] Usability of electronic patient-reported outcome measures for older patients with cancer: secondary analysis of data from an observational single center study

D Riedl, J Lehmann, M Rothmund, D Dejaco… - Journal of Medical …, 2023 - jmir.org
Background Patient-reported outcomes are considered the gold standard for assessing
subjective health status in oncology patients. Electronic assessment of patient-reported …

A scoping review of the electronic collection and capture of patient reported outcome measures for children and young people in the hospital setting

A Alarilla, NJ Sebire, J Keith, M Cortina-Borja… - PLOS Digital …, 2025 - journals.plos.org
Patient reported outcome measures (PROMs) capture patients' views of their health status
and the use of PROMs as part of standard care of children and young people has the …

Implementation of daily patient‐reported outcome measurements to support children with cancer

A Meryk, G Kropshofer, B Hetzer, D Riedl… - Pediatric Blood & …, 2021 - Wiley Online Library
Background Several stakeholders, including patients and health care providers, suggest
symptom self‐reporting measurements for a more patient‐directed cancer control approach …

Use of daily patient-reported outcome measurements in pediatric cancer care

A Meryk, G Kropshofer, B Hetzer, D Riedl… - JAMA Network …, 2022 - jamanetwork.com
Importance Patient-reported outcome measurements (PROMs) are emerging as an
important component of adult cancer care, but little has been done with regard to PROMs for …

Disagreement between mothers' and fathers' rating of health-related quality of life in children with cancer

A Meryk, G Kropshofer, B Hetzer, D Riedl… - Quality of Life …, 2023 - Springer
Purpose Serial assessment of health condition based on self-report made by children and
their proxies has consistently shown a lack of congruence. The study explored the …

Pioneering sustainable treatment delivery in childhood leukemia through synchronous telemedicine—A pilot study

A Meryk, C Salvador, G Kropshofer… - … Journal of Cancer, 2025 - Wiley Online Library
Cancer care places a heavy economic burden on families and health systems, driven by
high treatment costs, lengthy hospital stays, and the necessity for extensive travel to …

Supportive methods for childhood acute lymphoblastic leukemia then and now: A compilation for clinical practice

A Podpeskar, R Crazzolara, G Kropshofer… - Frontiers in …, 2022 - frontiersin.org
Survival of childhood acute lymphoblastic leukemia has significantly improved over the past
decades. In the early years of chemotherapeutic development, improvement in survival rates …

Can virtual care reduce treatment burden in pediatric leukemia? A retrospective cost analysis

J Dreher, A Meryk, D Riedl, G Kropshofer… - Pediatric Blood & …, 2023 - Wiley Online Library
We conducted a retrospective analysis to determine the potential reduction in treatment
burden through the expansion of virtual care among children with leukemia (n= 152) …

[HTML][HTML] Integration of Daily Patient-Reported Outcome Measures in Pediatric Stem Cell Transplantation

B Hetzer, A Meryk, G Kropshofer, C Salvador… - … and Cellular Therapy, 2023 - Elsevier
Patients' reports of their health status are increasingly used in hematopoietic stem cell
transplantation (SCT) to better understand the negative impact on symptom burden and …