Despite growing international interest, the caregiving body of literature lacks a recent
understanding of young carers' experiences and their contact with the health care system …

Background Multiple sclerosis (MS) is a chronic serious condition of uncertain course and
outcome. There is relatively little literature on the experiences of people who live with a …

Young dementia carers need to be recognised and supported in their role. They need help
to understand the illness, what changes are expected and how it can affect their family …

People living with young onset dementia face significant barriers to diagnosis, resulting in
delays, misdiagnoses, and treatment gaps. We examined the process of accessing and …

Young adults thrust into the role of caregiving for parents with young-onset dementia (YOD)
face unique challenges during their formative years. While existing research acknowledges …

Young dementia carers (YDCs) rarely receive appropriate training and support. Their
visibility and identification remain dangerously low, and, consequently, support initiatives …

Health research and policies call for patient engagement at all stages of the research
process. Involving patients and members of the public in research processes enables a …

Le cancer est une maladie chronique dont l'incidence et la prévalence ne cessent de croître
partout dans le monde. Le cancer frappe les adultes de plus en plus jeunes et un Canadien …

People living with young onset dementia and their families have high needs for support, but
experience difficulties accessing services. This dissertation critically examines access to …