Objective To describe the experiences and perspectives of children and adolescents on
dialysis. Design A systematic review of qualitative studies was conducted that explored the …

Context Fathers' contributions to the management of long‐term childhood medical
conditions are under‐represented in the literature; therefore, the full extent of their …

OBJECTIVE: Sharing qualitative research findings with participants, namely member-check,
is perceived as a procedure designed to enhance study credibility and participant …

Background There currently exists a vast amount of literature concerning chronic illness self-
management, however the developmental patterns and sustainability of self-management …

Background Parents of children with a chronic kidney disease (CKD) have a crucial role in
the management of their child's disease. The burden on parents is high: they are often …

Self-management is crucial for people living with chronic diseases, but the actual process of
integrating self-management has not been explored in depth. In this article, we investigate …

Background Little is known about the respective experience of fathers and mothers within
couples when managing their child's long‐term medical condition. This study therefore …

Objectives To identify self-report, self-management measures for adults with chronic
conditions, and describe their purpose, theoretical foundation, dimensionality (multi versus …

Objective To identify whether community-based Self-Management Programs (SMPs) actively
engaged, or taught, individuals patient-oriented strategies; and whether having these …

Background Mobile apps for mobile phones and tablet devices are widely used by children
and young people aged 0-18 years with long-term health conditions, such as chronic kidney …