Objectives To describe neurodevelopment at age 5 among children born preterm. Design
Population based cohort study, EPIPAGE-2. Setting France, 2011. Participants 4441 …

Children with complex care needs (CCNs) are in need of improved access to healthcare
services, communication, and support from healthcare professionals to ensure high-quality …

Objective The goal of this review was to identify recommendations within the literature on
how to improve the transition from paediatric to adult healthcare from the perspective of …

Abstract Background Severe Neurological Impairment (SNI) is a term for which there is no
consistently used definition. This may hamper consistency in the reporting of research in the …

Background Follow-up of very preterm infants is essential for reducing risks of health and
developmental problems and relies on parental engagement. We investigated parents' …

Pediatric and neonatal patients admitted to acute and critical care wards may experience
critical deterioration events that may lead to unexpected deaths if unrecognized and …

Objectives To describe parent-reported healthcare service use at age 5 years in children
born very preterm and investigate whether perinatal and social factors and the use of very …

Background An increasing number of children have complex care needs (CCN) that impact
their health and cause limitations in their lives. More of these youth are transitioning from …

The number of Canadian children and youth with complex care needs has continued to rise,
and their need for resources across all sectors can be extensive. Navigating the maze of …

There is wide variation in terminology used to refer to children living with complex needs,
across clinical, research and policy settings. It is important to seek to reconcile this variation …