The ethical, legal, and social implications program of the National Human Genome Research Institute: reflections on an ongoing experiment

JE McEwen, JT Boyer, KY Sun… - Annual Review of …, 2014 - annualreviews.org
For more than 20 years, the Ethical, Legal, and Social Implications (ELSI) Program of the
National Human Genome Research Institute has supported empirical and conceptual …

Evolving approaches to the ethical management of genomic data

JE McEwen, JT Boyer, KY Sun - Trends in Genetics, 2013 - cell.com
The ethical landscape in the field of genomics is rapidly shifting. Plummeting sequencing
costs, along with ongoing advances in bioinformatics, now make it possible to generate an …

Three decades of ethical, legal, and social implications research: Looking back to chart a path forward

DD Dolan, SSJ Lee, MK Cho - Cell genomics, 2022 - cell.com
More than thirty years ago in the United States, the National Center for Human Genome
Research (NCHGR) at the National Institutes of Health (NIH) and its partner in the Human …

[HTML][HTML] The human genome project

L Gannett - 2008 - seop.illc.uva.nl
The 20 th century opened with rediscoveries of Gregor Mendel's studies on patterns of
inheritance in peas and closed with a research project in molecular biology that was …

Bioethics methods in the ethical, legal, and social implications of the human genome project literature

RL Walker, C Morrissey - Bioethics, 2014 - Wiley Online Library
While bioethics as a field has concerned itself with methodological issues since the early
years, there has been no systematic examination of how ethics is incorporated into research …

[图书][B] Bioethics, healthcare and the soul

H ten Have, R Pegoraro - 2021 - taylorfrancis.com
This thought-provoking book explores the connections between health, ethics, and soul. It
analyzes how and why the soul has been lost from scientific discourses, healthcare …

Challenges and opportunities for ELSI early career researchers

J Bell, M Ancillotti, V Coathup, S Coy, T Rigter… - BMC Medical …, 2016 - Springer
Background Over the past 25 years, there has been growing recognition of the importance of
studying the Ethical, Legal and Social Implications (ELSI) of genetic and genomic research …

Grand challenge: ELSI in a changing global environment

D Greenbaum - Frontiers in genetics, 2013 - frontiersin.org
Contrary to conventions held by many scientists, academic research is not entirely
conducted in a vacuum. And while it may be somewhat difficult for young and even …

Characterizing ELSI/RRI/RI Frameworks and their Links to Innovation Management Theory

AÁ Robinson, S Miyashita… - … on Management of …, 2023 - ieeexplore.ieee.org
The concepts of ethical, legal, and societal issues (ELSI), responsible research and
innovation (RRI), and responsible innovation (RI) are recognized and encouraged in the …

Go big or go home: Big science and ELSI funding

R Meirom, A Shavit, D Ben-Ari, B Yona… - AJOB …, 2016 - Taylor & Francis
In their article on the European Commission's nearly illfated Human Brain Project (HBP),
and the concomitant United States BRAIN (Brain Research through Advancing Innovative …