Background: Informal caregivers are a significant part of the hospice and palliative care
landscape as members of the interdisciplinary care team. Despite this, little is known about …

Abstract Context Amyotrophic Lateral Sclerosis (ALS) is a fatal neurodegenerative disease,
associated with impaired quality of life for patients and caregivers. As treatment is largely …

People working in healthcare experience grief professionally as well as personally and
societally. Attitudinal shifts are needed, argues Lucy Selman, to improve access to formal …

Objective: This study explores the supportive needs of informal caregivers of people with
amyotrophic lateral sclerosis (ALS) in Switzerland. Method: We conducted semi-structured …

Abstract Background Although Motor Neurone Disease (MND) caregivers are most
challenged physically and psychologically, there is a paucity of population-based research …

The purpose of this mixed methods systematic review was to identify factors associated with
anticipatory grief, post-death grief, and prolonged grief in informal carers of people living …

Background: Studies on the experiences of consumers with Motor Neurone Disease
Associations at end of life and bereavement are lacking, and their role and capability within …

Informal caregivers provide the major part of care for persons with amyotrophic lateral
sclerosis (ALS), a terminal neurodegenerative disease. Apart from providing care, informal …

Although the progressive clinical trajectory of motor neurone disease (MND) is widely
understood, multiple challenges remain preventing optimal end-of-life care for this …

Background: There are few illnesses as disruptive as motor neurone disease, a fatal
neurodegenerative condition, where diagnosis introduces a clinical narrative of inevitable …