What do we mean by partnership in making decisions about treatment?

C Charles, T Whelan, A Gafni - Bmj, 1999 - bmj.com
For many decades, the dominant approach to making decisions about treatment in the
medical encounter has been one of paternalism. 1–7 In recent years this model has been …

Medical decision-making and minors: issues of consent and assent

TL Kuther - Adolescence, 2003 - search.proquest.com
The physician-patient relationship has been described as an egalitarian partnership in
which patients and physicians work together to make healthcare decisions. Although adults …

Hearing children's voices: methodological issues in conducting focus groups with children aged 7-11 years

M Morgan, S Gibbs, K Maxwell… - Qualitative research, 2002 - journals.sagepub.com
Children are increasingly acknowledged to have rights in the determination of decisions that
affect them. This has encouraged research to be undertaken with children themselves to …

Understanding of prognosis among parents of children who died of cancer: impact on treatment goals and integration of palliative care

J Wolfe, N Klar, HE Grier, J Duncan, S Salem-Schatz… - Jama, 2000 - jamanetwork.com
ContextParents' understanding of prognosis or decision making about palliative care for
children who die of cancer is largely unknown. However, a more accurate understanding of …

Children's participation in decision-making: balancing protection with shared decision-making using a situational perspective

I Coyne, M Harder - Journal of Child Health Care, 2011 - journals.sagepub.com
Children's participation in decision-making in the health care setting is complex because
parents and health professionals tend to take a protective stance towards children to act in …

Children's competence for assent and consent: a review of empirical findings

VA Miller, D Drotar, E Kodish - Ethics & behavior, 2004 - Taylor & Francis
This narrative review summarizes the empirical literature on children's competence for
consent and assent in research and treatment settings. Studies varied widely regarding …

Children's participation in the decision-making process during hospitalization: an observational study

I Runeson, I Hallström, G Elander… - Nursing …, 2002 - journals.sagepub.com
Twenty-four children (aged 5 months to 18 years) who were admitted to a university hospital
were observed for a total of 135 hours with the aim of describing their degree of participation …

Children and bioethics: clarifying consent and assent in medical and research settings

M Spriggs - British medical bulletin, 2023 - academic.oup.com
Introduction The concept of consent in the pediatric setting is complex and confusing.
Clinicians and researchers want to know whose consent they should obtain, when a child …

Care of the dying adolescent: special considerations

DR Freyer - Pediatrics, 2004 - publications.aap.org
More than 3000 adolescents in the United States die annually from the effects of chronic
illness. Providing appropriate end-of-life care for these patients is particularly challenging …

Genetic testing in asymptomatic minors

P Borry, G Evers-Kiebooms, MC Cornel… - European Journal of …, 2009 - nature.com
Although various guidelines and position papers have discussed, in the past, the ethical
aspects of genetic testing in asymptomatic minors, the European Society of Human Genetics …