Objective This systematic review identified instruments quantitatively assessing
psychosocial adaptation and outcomes in families of children with congenital heart disease …

Background Individualized family-centered developmental care (IFDC) is considered the
standard of care for premature/medically fragile newborns and their families in intensive …

Introduction: Lactating parents of infants hospitalised for critical congenital heart disease
(CHD) face significant barriers to direct breastfeeding. While experiences of directly …

Infants and children born with CHD are at significant risk for neurodevelopmental delays and
abnormalities. Individualised developmental care is widely recognised as best practice to …

Background: Parents who have a newborn with a congenital heart defect experience
negative emotions, which may determine the emotional state of their children. Methods: The …

Purpose To explore the relationships between growth trajectory, parenting stress and parent
post-traumatic stress (PTS), in infants with congenital heart disease, and the moderating role …

Background Parents of newborns with congenital heart disease (CHD) are at risk for anxiety,
depression, and post-traumatic stress. Few studies have examined whether modifiable …

Background Patients with congenital heart disease (CHD) and their parents face challenges
throughout their lives that can lead to anxiety lasting into adulthood. We aim to assess the …

Purpose This cross-sectional study aimed to create and evaluate a care needs scale for
mothers of children with congenital heart disease (CHD) to determine its psychometric …

Background Parents of infants born with congenital heart disease (CHD) who require open
heart surgery after birth are at risk for prolonged psychological distress. Even after their …