Interventions for improving treatment adherence in young people with inflammatory bowel disease (IBD): A systematic review of behaviour change theory and …

C Screti, L Atkinson, R Shaw… - Journal of Child …, 2024 - journals.sagepub.com
Treatment adherence is important but challenging for young people with inflammatory bowel
disease (IBD). Behavioural interventions may support adherence, leading to improved …

The Application and Evolution of the Social-Ecological Model for Adolescent and Young Adult Readiness for Transition: A Scoping Review

LN Pitts, A Armstrong, L Fleming, PL Fazeli… - Journal of Pediatric …, 2025 - Elsevier
Introduction This scoping review examines the application and evolution of the Social-
Ecological Model for Adolescent and Young Adult Readiness for Transition (SMART) …

Development of a complex intervention to support parents of adolescents with chronic illness transferring from pediatrics to adult care (ParTNerSTEPs)

EL Thomsen, BA Esbensen, S Hanghøj… - BMC Health Services …, 2022 - Springer
Background Transition from pediatric to adult care for adolescents with chronic illness is
associated with outpatient non-attendance and low treatment adherence in adolescents …

A comprehensive transfer program from pediatrics to adult care for parents of adolescents with chronic illness (ParTNerSTEPs): study protocol for a randomized …

EL Thomsen, KA Boisen, S Hanghøj, H Hansson… - Trials, 2022 - Springer
Background Previous research shows that adolescents with a chronic illness have more
successful transfers to adult care if their parents are involved during the transition. However …

Supporting the parent‐to‐child transfer of self‐management responsibility for chronic kidney disease: A qualitative study

R Nightingale, S Kirk, V Swallow… - Health …, 2023 - Wiley Online Library
Introduction As children with long‐term conditions (LTCs) mature, they are usually expected
to assume responsibility from their parents for self‐management of their condition. Little is …

Using a Transition Design Approach to Explore the Adolescent Shift to Adulthood

JT Jarrell, OM Stransky, J Frazier… - International …, 2024 - journals.sagepub.com
Transition to adulthood is a multi-faceted, complex process that affects all areas of an
adolescent's internal and external world. Prior methodologies to assess the medical facet of …

Letting go of control: A qualitative descriptive study exploring parents' perspectives on their child's transition from pediatric to adult care for inflammatory bowel disease

A Bihari, KJ Goodman, E Wine… - Journal of Health …, 2024 - journals.sagepub.com
Parents of young adults with chronic disease are important stakeholders in their child's
transition from pediatric to adult care. There remains a gap in characterizing the parent …

Experiences and expectations of parents when young people with congenital heart disease transfer from pediatric to adult care: A qualitative systematic review

B Lykkeberg, MW Noergaard… - Journal of Child Health …, 2024 - journals.sagepub.com
Parents encounter challenges when their child with congenital heart disease is transferred
from pediatric to adult care. Until recently these parents' experiences and expectations of …

Navigating liminal spaces together: a qualitative metasynthesis of youth and parent experiences of healthcare transition

K South, C DeForge, CA Celona… - Journal of Transition …, 2023 - degruyter.com
Transition from pediatric to adult care for adolescents and young adults (AYAs) with chronic
illness affects the entire family. However, little research has compared AYA and parent …

[HTML][HTML] Exploring six successful nurse-led transition clinics: Experiences and outcomes

J Sturm, AL van Staa, JC Escher, J Sattoe - Health Care Transitions, 2024 - Elsevier
Background and purpose In the Netherlands, the 2022 Quality Standard'Youth in transition
from paediatric to adult care'underscores the importance of structured transitional care for …