Objective Delivering a life changing diagnosis can be a distressing experience for patients
and a challenging task for professionals. Diagnosis delivery can be especially difficult for …

Research ethics is an important part of any study. Ethics goes beyond ethics committee
approval and consent documents. It addresses broader issues of respect, inclusion, and …

This paper draws on a Person-Oriented Research Ethics model in conjunction with a
Trauma-Informed Approach to suggest a methodological framework and provide practical …

Purpose Healthcare decision making in motor neurone disease (MND) focuses on symptom
management and quality of life. Decision making may be affected by personal approach to …

Objective How an MND diagnosis is communicated has implications for how individuals
adapt to their illness. The consultation process with the neurologist, diagnosis delivery, and …

Bakgrund: ALS är en ovanlig sjukdom utan kurativ behandling som successivt progredierar
och slutligen leder till döden. I dagsläget finns bara läkemedel med bromsande effekt vilket …

Bakgrund: Amyotrofisk lateralskleros (ALS) är en obotlig sjukdom. Att leva med ALS medför
att nervceller som styr skelettmuskler dör vilket leder till att den viljestyrda muskulaturen …

There is limited research into adults 'experiences of being assessed and diagnosed with an
intellectual disability (ID). We asked ten individuals referred to an adult learning disability …

Motor Neurone Disease (MND) is an umbrella term given to a group of progressive and, as
yet, incurable neurodegenerative diseases affecting 4.5 in 100,000 individuals globally …

Doctoral Thesis Submitted in partial fulfilment of the Lancaster University Doctorate in
Clinical Psychology A qualitative explo Page 1 Doctoral Thesis Submitted in partial …