Patient engagement in research related to dementia: a scoping review

J Bethell, E Commisso, HM Rostad, M Puts… - …, 2018 - journals.sagepub.com
Patient 'engagement'or 'involvement'in health research broadly refers to including people
with lived experience (ie individuals with personal experience of a health issue and their …

Bridging the divide between biomedical and psychosocial approaches in dementia research: the 2019 INTERDEM manifesto

M Vernooij-Dassen, E Moniz-Cook, F Verhey… - Aging & Mental …, 2021 - Taylor & Francis
Objective To provide a new perspective on integrated biomedical and psychosocial
dementia research. Background Dementia is being recognized as a multifactorial syndrome …

Patient and public involvement in dementia research in the European Union: a scoping review

J Miah, P Dawes, S Edwards, I Leroi, B Starling… - BMC geriatrics, 2019 - Springer
Background Internationally, there is a drive to involve patients and the public in health
research, due to recognition that patient and public involvement (PPI) may increase the …

Dementia‐friendly community initiatives: An integrative review

K Shannon, K Bail, S Neville - Journal of clinical nursing, 2019 - Wiley Online Library
Aim To synthesise international research conducted on dementia‐friendly community
initiatives. Background The number of people living with dementia is increasing as a result …

What matters to you when the nursing home is your home: a qualitative study on the views of residents with dementia living in nursing homes

A Nygaard, L Halvorsrud, EK Grov, A Bergland - BMC geriatrics, 2020 - Springer
Background Dementia is recognised as one of the greatest global public health challenges.
A central tenet of national health and social care policy is to ensure that services support …

[HTML][HTML] This is Me: Evaluation of a boardgame to promote social engagement, wellbeing and agency in people with dementia through mindful life-storytelling

K Niedderer, V Holthoff-Detto, TJ Van Rompay… - Journal of aging …, 2022 - Elsevier
Receiving a dementia diagnosis is a difficult experience for most people and often affects
their wellbeing negatively. To support people's wellbeing, in a therapeutic context, life …

Enhancing shared and surrogate decision making for people living with dementia: a systematic review of the effectiveness of interventions

A Geddis‐Regan, L Errington, C Abley… - Health …, 2021 - Wiley Online Library
Background Dementia can have a profound impact on decision making. People living with
dementia (PLwD) often need to make decisions about health care, and, as dementia …

Misfitting the research process: Shaping qualitative research “in the field” to fit people living with dementia

J Webb, V Williams, M Gall… - International Journal of …, 2020 - journals.sagepub.com
It is increasingly recognized that people living with dementia should be included in
qualitative research that foregrounds their voices, but traditional research approaches can …

The VOICE study–A before and after study of a dementia communication skills training course

R O'Brien, SE Goldberg, A Pilnick, S Beeke… - PloS one, 2018 - journals.plos.org
Background A quarter of acute hospital beds are occupied by persons living with dementia,
many of whom have communication problems. Healthcare professionals lack confidence in …

Medicines management issues in dementia and coping strategies used by people living with dementia and family carers: a systematic review

RH Lim, T Sharmeen - International Journal of Geriatric …, 2018 - Wiley Online Library
Objectives Medicines play a key role in the lives of people with dementia, primarily to
manage symptoms. Managing medicines is complex for people with dementia and their …