[HTML][HTML] Recruitment and retention of underrepresented populations in Alzheimer's disease research: a systematic review

AL Gilmore-Bykovskyi, Y Jin, C Gleason… - Alzheimer's & Dementia …, 2019 - Elsevier
Introduction Alzheimer's disease and related dementias (ADRD) disproportionately impact
racial and ethnic minority and socioeconomically disadvantaged adults. Yet, these …

Including older people in health and social care research: best practice recommendations based on the INCLUDE framework

VA Goodwin, MSA Low, TJ Quinn, EJ Cockcroft… - Age and …, 2023 - academic.oup.com
Background Older people are often explicitly or implicitly excluded from research, in
particular clinical trials. This means that study findings may not be applicable to them, or that …

Inclusion of older adults in the research and design of digital technology

I Mannheim, E Schwartz, W Xi, SC Buttigieg… - International journal of …, 2019 - mdpi.com
Digital technology holds a promise to improve older adults' well-being and promote ageing
in place. However, there seems to be a discrepancy between digital technologies that are …

[图书][B] Ordinary medicine: extraordinary treatments, longer lives, and where to draw the line

SR Kaufman - 2020 - degruyter.com
Sharon R. Kaufman examines the quandary of patients, families and doctors not knowing
the point where enough medical treatment becomes too much treatment. A hidden chain of …

Identifying and managing pain in people with Alzheimer's disease and other types of dementia: a systematic review

BS Husebo, W Achterberg, E Flo - CNS drugs, 2016 - Springer
Abstract Background and Objective Pain in patients with Alzheimer's disease is a complex
issue; these patients suffer from the common causes of acute and chronic pain, and some …

Aging with purpose: Systematic search and review of literature pertaining to older adults and purpose

J Irving, S Davis, A Collier - The International Journal of …, 2017 - journals.sagepub.com
Purpose can provide a sense of intentionality, guide behavior to achieve personal aims and
living objectives, and may offer insight into how and why certain people remain healthy over …

[HTML][HTML] Quality in residential care from the perspective of people living with dementia: The importance of personhood

R Milte, W Shulver, M Killington, C Bradley… - Archives of Gerontology …, 2016 - Elsevier
Background Providing quality care for people with dementia to meet the growing demand for
services is a significant challenge to Australia and globally. When it comes to planning for …

More than talking: A scoping review of innovative approaches to qualitative research involving people with dementia

L Phillipson, A Hammond - International Journal of …, 2018 - journals.sagepub.com
Participation in qualitative research frequently relies upon recall and verbal expression,
which may be difficult for some people with dementia. While the use of arts-based and visual …

An under-represented and underserved population in trials: methodological, structural, and systemic barriers to the inclusion of adults lacking capacity to consent

V Shepherd - Trials, 2020 - Springer
Background There is increasing international recognition that populations included in trials
should adequately represent the population treated in clinical practice; however, adults who …

Modifiable barriers for recruitment and retention of older adults participants from underrepresented minorities in Alzheimer's disease research

KK Indorewalla, MK O'Connor… - Journal of …, 2021 - journals.sagepub.com
Clinical Alzheimer's disease (AD) trials currently face a critical shortfall of thousands of
eligible participants, which inflates the duration and cost of the clinical study as well as …