Patient navigator programmes for children and adolescents with chronic diseases
R Lalji, L Koh, A Francis, R Khalid… - Cochrane Database …, 2024 - cochranelibrary.com
Background Despite a substantial global improvement in infant and child mortality from
communicable diseases since the early 1990s there is now a growing burden of chronic …
communicable diseases since the early 1990s there is now a growing burden of chronic …
Clinical practice guidelines for the care of girls and women with Turner syndrome: Proceedings from the 2023 Aarhus International Turner Syndrome Meeting
CH Gravholt, NH Andersen… - European Journal of …, 2024 - academic.oup.com
Turner syndrome (TS) affects 50 per 100 000 females. TS affects multiple organs through all
stages of life, necessitating multidisciplinary care. This guideline extends previous ones and …
stages of life, necessitating multidisciplinary care. This guideline extends previous ones and …
Nurses' and physicians' perspectives on implementation barriers and facilitators in a transfer program for parents of adolescents with chronic illness
EL Thomsen, JC Koppelhus, KA Boisen… - Journal of Advanced …, 2024 - Wiley Online Library
Aim To identify barriers and facilitators impacting the implementation of a comprehensive
transfer program aimed at parents of adolescents with chronic illness in clinical practice …
transfer program aimed at parents of adolescents with chronic illness in clinical practice …
Navigating the transition of care in patients with inborn errors of immunity: a single-center's descriptive experience
MA Mejía González, P Quijada Morales… - Frontiers in …, 2023 - frontiersin.org
The transition from pediatric to adult care is a critical milestone in managing children,
especially in those with complex chronic conditions. It involves ensuring the patient and …
especially in those with complex chronic conditions. It involves ensuring the patient and …
The roles and experiences of adolescents with cystic fibrosis and their parents during transition: A qualitative interview study
KV Wyngaert, S Debulpaep, W Van Biesen… - Journal of Cystic …, 2024 - Elsevier
Abstract Purpose Inadequate participation of Adolescents and Young Adults (AYAs) and
parents are well-established barriers of transition. Shifts in roles are mandatory with …
parents are well-established barriers of transition. Shifts in roles are mandatory with …