Background Recent studies mention a need to investigate partnership roles and dynamics
within patient and public involvement and engagement (PPIE) in health research, and how …

Children and young people have much to contribute to the design and delivery of health
research and care. Nevertheless, there are multiple barriers to meaningful and impactful …

Development of specific medical devices (MDs) is required to meet the healthcare needs of
children and young people (CYP). In this context, MD development should address changes …

The COVID-19 pandemic altered the way many people worked. Remote and creative ways
were favoured and utilised for consultation activities. In this paper, we draw attention to how …

Millions of children and young people (CYP) in the UK are affected by chronic or rare health
conditions. Rapid advances in science and technology have resulted in CYP with chronic …

Introduction There is a growing consensus that children and young people (CYP) should be
involved in matters that concern them. Progress is made in involving CYP in developing …

The COVID-19 pandemic altered the way many people worked. Remote and creative ways
were favoured and utilised for consultation activities. In this paper, we draw attention to how …

Background Paediatric trials must contend with many challenges that adult trials face but
often bring additional obstacles. Decentralised trials, where some or all trial methods occur …

Rates of treatment non-adherence could be as high as 93% amongst young people with
Inflammatory Bowel Disease (IBD). However non-adherence to prescribed treatment plans …

Background: Key UK health policy advocates provision of self-care support (SCS) for
children with long-term conditions such as cystic fibrosis (CF). However, there is insufficient …