Paediatric to adult transition care for patients with sickle cell disease: a global perspective

BPD Inusa, CE Stewart, S Mathurin-Charles… - The Lancet …, 2020 - thelancet.com
Sickle cell disease is a life-threatening inherited condition designated as a public health
priority by WHO. Increased longevity of patients with sickle cell disease in high-income …

Biopsychosocial factors related to transition among adolescents and young adults with sickle cell disease: A systematic review

KE Rea, GK Cushman, T Santee, L Mee - Critical Reviews in Oncology …, 2021 - Elsevier
It is critical to support adolescents and young adults (AYAs) with sickle cell disease (SCD)
during transition to adult healthcare. We provide a systematic review of literature related to …

Establishing a sickle cell disease registry in Africa: experience from the Sickle Pan-African Research Consortium, Kumasi-Ghana

V Paintsil, EX Amuzu, I Nyanor, E Asafo-Adjei… - Frontiers in …, 2022 - frontiersin.org
Sickle cell disease (SCD) is the most common clinically significant hemoglobinopathy,
characterized by painful episodes, anemia, high risk of infection, and other acute and …

Stigma associated with sickle cell disease in Kumasi, Ghana

JM Buser, A Bakari, AA Seidu… - Journal of …, 2021 - journals.sagepub.com
Introduction People with sickle cell disease (SCD) often face stigmatization in Ghana and
elsewhere in Africa. Research is needed to understand whether it is necessary to design an …

Caregiver perception of sickle cell disease stigma in Ghana: an ecological approach

JM Buser, A Bakari, AA Seidu, A Osei-Akoto… - Journal of Pediatric …, 2021 - Elsevier
Introduction Sickle cell disease (SCD) stigma is a major community health issue. The
challenges of caring for someone with SCD can be overwhelming. We explored stigma and …

Transition readiness in adolescents and young adults with chronic genetic skin conditions

FO Ho, AM Rustad, Z Ren, LR Khabbaz… - Pediatric …, 2023 - Wiley Online Library
Abstract Background/Objectives Healthcare transition (HCT) refers to movement from
pediatric to adult healthcare models. Lack of HCT preparation contributes to poor health …

Transition preparation and satisfaction of care among adolescents and young adults with sickle cell disease at the Ghana Institute of Clinical Genetics

M Kwarteng-Siaw, ABA Kuma… - Journal of Pediatric …, 2022 - journals.lww.com
Expanding services in Ghana for people with sickle cell disease is expected to increase
childhood survival and need for transition to adult care. Little is known about patient …

Transitioning Adolescents with Perinatally Acquired HIV from Paediatric to Adult Centered Care: Caregivers' Perspective

A Alabi, EO Asuquo… - … DISEASE & Health, 2021 - research.manuscritpub.com
Aim: To investigate caregivers' attitude towards transitioning HIV-positive adolescents from
paediatric to adult centered care as well as understanding their perspective of transition …

Prevalence and factors that affect transition from paediatric to adult services among adolescents with sickle cell disease at a level IV health facility in Western Kenya.

N Kariuki, MN Wanyama… - East African Medical …, 2022 - search.ebscohost.com
Objective: To determine the proportion of adolescents with Sickle Cell Disease (SCD) who
transition from Paediatric to adult services and to explore the factors that affect successful …

[PDF][PDF] Transitioning Adolescents with Perinatally Acquired HIV from Paediatric to Adult Centered Care: Caregivers' Perspective

C Ogubuike, EO Asuquo, A Alabi - academia.edu
Aim: To investigate caregivers' attitude towards transitioning HIV-positive adolescents from
paediatric to adult centered care as well as understanding their perspective of transition …