'How in general would you rate your health–poor, fair, good, very good or excellent?'This
simple question is typically labelled self-rated health (SRH) and is also known as self …

Background & Aims In an attempt to uncover unmet patient needs, this review aims to
synthesise quantitative and qualitative studies on patients' quality of life and their experience …

Objective There are more than 6,000 known rare diseases (RDs), which are often serious,
chronic, and progressive conditions. Cumulatively, having a RD is actually common …

Objective: Cancer-related fatigue (CRF) is a potentially chronic condition that is
inadequately discussed, diagnosed and treated. This study examined the factors that …

Aims To explore how cancer services may positively promote and support patients' well‐
being throughout treatment. Specifically to identify components of care that are important to …

The present study used a narrative-based approach to identify common themes that
characterized the illness experience and quality of life of patients affected by rare disease …

Background There has been a dramatic increase in liver disease over recent decades, with
morbidity and mortality rates predicted to rise significantly. In order to effectively support this …

Many people with inflammatory bowel disease (IBD), sometimes lacking adequate face-to-
face sources of support, turn to online communities to meet others with the disease. These …

People who experience symptoms of autoimmune diseases often have to struggle for illness
recognition. Women experiencing such symptoms face additional challenges as their …

Most studies on the gendered aspects of biographical disruption are predicated on adult
experiences of chronic illness, often based on heterogeneous samples. This paper goes …