Although resilience and high quality of life are demonstrated by many individuals with
congenital heart disease, a range of significant psychological challenges exists across the …

The epidemiology of congenital heart disease (CHD) has changed in the past 50 years as a
result of an increase in the prevalence and survival rate of CHD. In particular, mortality in …

Increasing survival rates for patients with congenital heart disease (CHD) represent a major
achievement of modern medicine. Despite incredible progress been made in diagnosis …

Purpose/Objective: Self-efficacy forms key modifiable personal resources influencing illness
management, rehabilitation participation, and their outcomes such as perceived health …

Background People with a Fontan circulation experience a range of physical, psychosocial
and neurodevelopmental challenges alongside, or caused by, their cardiac condition, with …

Background We compared physical functioning, mental health, and quality of life (QoL) of
patients with different subtypes of congenital heart disease (CHD) in a large international …

Aims Geographical differences in patient-reported outcomes (PROs) of adults with
congenital heart disease (ConHD) have been observed, but are poorly understood. We …

Background As survival improves in the congenital heart disease (CHD) population, health-
related quality of life (HRQOL) outcomes become increasingly important. While surgery …

Objectives Improved treatments for patients with congenital heart disease (CHD) have led to
a growing interest in long-term functional outcomes such as health-related quality of life …

Over the past four decades, the number of papers on quality of life (QoL) in congenital heart
disease (CHD) has grown exponentially. However, firm conclusions have been hard to …