Family carers providing support to a person dying in the home setting: a narrative literature review

SM Morris, C King, M Turner, S Payne - Palliative medicine, 2015 - journals.sagepub.com
Background: This study is based on people dying at home relying on the care of unpaid
family carers. There is growing recognition of the central role that family carers play and the …

A 10-year literature review of family caregiving for motor neurone disease: moving from caregiver burden studies to palliative care interventions

SM Aoun, B Bentley, L Funk, C Toye… - Palliative …, 2013 - journals.sagepub.com
Background: There is growing awareness that different terminal diseases translate into
different family caregiver experiences, and the palliative and supportive care needs of these …

'You say treatment, I say hard work': treatment burden among people with chronic illness and their carers in Australia

A Sav, E Kendall, SS McMillan, F Kelly… - Health & social care …, 2013 - Wiley Online Library
The aim of this study was to explore treatment burden among people with a variety of
chronic conditions and comorbidities and their unpaid carers. The burden of living with …

Hospital and emergency department use in the last year of life: a baseline for future modifications to end‐of‐life care

LK Rosenwax, BA McNamara, K Murray… - Medical Journal of …, 2011 - Wiley Online Library
Objectives: To describe hospital and emergency department use in the last year of life by
people for whom death from cancer or one of another nine conditions was an expected …

The needs of informal caregivers of elderly people living at home: an integrative review

AL Silva, HJ Teixeira, MJC Teixeira… - Scandinavian journal of …, 2013 - Wiley Online Library
Background Over the past years, researchers have developed studies about informal
caregivers who care for the elderly living at home. Meeting these needs can help these …

Gender and family caregiving at the end-of-life in the context of old age: A systematic review

T Morgan, L Ann Williams, G Trussardi… - Palliative …, 2016 - journals.sagepub.com
Background: As societies age and governments attempt to manage within constrained
health budgets by moving care into community settings, women will be called upon to …

How palliative care patients' feelings of being a burden to others can motivate a wish to die. Moral challenges in clinics and families

H Gudat, K Ohnsorge, N Streeck… - Bioethics, 2019 - Wiley Online Library
The article explores the underlying reasons for patients' self‐perception of being a burden
(SPB) in family settings, including its impact on relationships when wishes to die (WTD) are …

Cuidar de quem cuida de idosos dependentes: por uma política necessária e urgente

MCS Minayo - Ciência & Saúde Coletiva, 2021 - SciELO Brasil
Apresenta-se e discute-se a situação das cuidadoras e dos cuidadores familiares de idosos
dependentes. Ressaltam-se sua dedicação, seus problemas e os encaminhamentos para …

'Because it's the wife who has to look after the man': A descriptive qualitative study of older women and the intersection of gender and the provision of family caregiving …

LA Williams, LS Giddings, G Bellamy… - Palliative …, 2017 - journals.sagepub.com
Background: Research indicates that women are the primary family caregivers for others at
life's end and, because of ageing populations, will keep fulfilling this role as they age. Yet …

Predictors of caregiver burden across the home‐based palliative care trajectory in O ntario, C anada

D Guerriere, A Husain, B Zagorski… - Health & Social Care …, 2016 - Wiley Online Library
Family caregivers of patients enrolled in home‐based palliative care programmes provide
unpaid care and assistance with daily activities to terminally ill family members. Caregivers …