[HTML][HTML] Human germline genome editing

KE Ormond, DP Mortlock, DT Scholes… - The American Journal of …, 2017 - cell.com
With CRISPR/Cas9 and other genome-editing technologies, successful somatic and
germline genome editing are becoming feasible. To respond, an American Society of …

Methods for practising ethics in research and innovation: A literature review, critical analysis and recommendations

W Reijers, D Wright, P Brey, K Weber… - … and engineering ethics, 2018 - Springer
This paper provides a systematic literature review, analysis and discussion of methods that
are proposed to practise ethics in research and innovation (R&I). Ethical considerations …

Values associated with public involvement in health and social care research: a narrative review

F Gradinger, N Britten, K Wyatt, K Froggatt… - Health …, 2015 - Wiley Online Library
Background Much has been written about public involvement (PI) in health and social care
research, but underpinning values are rarely made explicit despite the potential for these to …

Public and patient involvement in health technology assessment: a framework for action

J Abelson, F Wagner, D DeJean… - International journal of …, 2016 - cambridge.org
Objective: As health technology assessment (HTA) organizations in Canada and around the
world seek to involve the public and patients in their activities, frameworks to guide …

Public deliberation in health policy and bioethics: mapping an emerging, interdisciplinary field

J Abelson, EA Blacksher, KK Li… - Journal of …, 2013 - delibdemjournal.org
For over two decades, the “deliberative turn” has rooted itself in the fields of health policy
and bioethics, producing a growing body of deliberation in action and associated academic …

[HTML][HTML] Why and when should we use public deliberation?

S Solomon, J Abelson - The Hastings Center Report, 2012 - ncbi.nlm.nih.gov
Public deliberation is an approach policy-makers can use to tackle public policy problems
that require the consideration of both values and evidence. However, there is much …

[HTML][HTML] Enabling health technology innovation in Canada: Barriers and facilitators in policy and regulatory processes

M MacNeil, M Koch, A Kuspinar, D Juzwishin… - Health Policy, 2019 - Elsevier
Objectives: Health care innovation and technologies can improve patient outcomes, but
policies and regulations established to protect the public interest may become barriers to …

Applying experience-based co-design with vulnerable populations: Lessons from a systematic review of methods to involve patients, families and service providers in …

A Mulvale, A Miatello, C Hackett… - Patient Experience …, 2016 - pxjournal.org
The objective was to identify methods used to involve patients, family and service providers
in child and youth mental health service improvement research. We analyzed the alignment …

Integrating social justice concerns into economic evaluation for healthcare and public health: A systematic review

V Dukhanin, A Searle, A Zwerling, DW Dowdy… - Social Science & …, 2018 - Elsevier
Social justice is the moral imperative to avoid and remediate unfair distributions of societal
disadvantage. In priority setting in healthcare and public health, social justice reaches …

Patient and public involvement in health technology assessment: update of a systematic review of international experiences

MP Gagnon, MT Dipankui, TG Poder… - International Journal of …, 2021 - cambridge.org
ObjectiveTo summarize current evidence on patient and public involvement (PPI) in health
technology assessment (HTA) in order to synthesize the barriers and facilitators, and to …