Transition to adulthood and transfer to adult care of adolescents with congenital heart disease: a global consensus statement of the ESC Association of …

P Moons, EL Bratt, J De Backer… - European heart …, 2021 - academic.oup.com
The vast majority of children with congenital heart disease (CHD) in high-income countries
survive into adulthood. Further, paediatric cardiac services have expanded in middle …

How do young women with cancer experience oncofertility counselling during cancer treatment? A qualitative, single centre study at a Danish tertiary hospital

L Bentsen, H Pappot, M Hjerming, LB Colmorn… - Cancers, 2021 - mdpi.com
Simple Summary Adolescents and young adults (AYAs) diagnosed with cancer undergo a
range of cancer treatments with intension of being cured. It is well-documented that cancer …

Demanding devices–Living with diabetes devices as a pre-teen

RAS Pals, P Hviid, B Cleal, D Grabowski - Social science & medicine, 2021 - Elsevier
Diabetes technology is an integral part of the lives of children with type 1 diabetes (T1D).
However, children's experiences with these technologies are often overlooked. Furthermore …

The “combined team” transition clinic model in endocrinology results in high adherence rates and patient satisfaction

O Twito, R Shatzman-Steuerman, N Dror… - Journal of Pediatric …, 2019 - degruyter.com
Background A structured transition process for young adults with chronic medical conditions
from pediatric to adult clinics is strongly promoted. However, the most appropriate transition …

Adolescents and young adults communicating with gastroenterologists: variation in inflammatory bowel disease clinical communication

N Karimi, A Lukin, AR Moore, JL Pipicella… - International Journal of …, 2023 - degruyter.com
Objectives This study explored the variation in emerging adults' communication with
gastroenterologists around the management of inflammatory bowel disease (IBD). Methods …

[HTML][HTML] A qualitative evaluation of the Youth-Check program: a psychosocial intervention aimed at young people with cancer

S Hanghøj, KA Boisen, MF Nielsen, H Pappot… - Seminars in Oncology …, 2022 - Elsevier
Objectives In many countries, there is a lack of structured psychosocial health interventions
to support young people with cancer. Thus, we developed the nurse-led intervention the …

“I Got My Diagnosis on a Yellow Post-it Note”: Young Adult Cancer Patients' Experiences of the Process of Being Diagnosed With Cancer

MA Hauken, B Hølge-Hazelton, TMB Larsen - Cancer nursing, 2019 - journals.lww.com
Background Cancer in young adults is rare but young adult cancer patients (YACPs) are at
an increased risk of severe physical and psychosocial impairments during cancer treatment …

Appointed by young people–a qualitative study on young patients recruiting hospital staff in Denmark

S Hanghøj, EL Thomsen, C Blix, PG Hertz… - International Journal of …, 2021 - degruyter.com
Background There is a lack of knowledge about young peoples' wishes for the qualifications
including skills and personal traits of hospital staff during the recruitment process. Objective …

[PDF][PDF] Vers une approche Youth-friendly: perceptions de jeunes adultes belges atteints d'une affection chronique par rapport à leur vécu de la maladie: Recherche …

N Bajart, M Dauvrin - dial.uclouvain.be
Contenu: les maladies chroniques sont une problématique actuelle préoccupante et
souvent associée aux personnes âgées, notamment au travers du vieillissement de la …

[PDF][PDF] Optimising Care for Adolescents and Young Adults with Cystic Fibrosis in Australia

LR Holland - 2021 - nova.newcastle.edu.au
This foreword provides the story of how this work has come to be. It has several purposes.
The first is to describe the nature of the issue, experienced through my clinical and life work …