Hospice interventions for persons living with dementia, family members and clinicians: A systematic review

RKF Lassell, LT Moreines, MR Luebke… - Journal of the …, 2022 - Wiley Online Library
Background Hospice care was initially designed for seriously ill individuals with cancer.
Thus, the model and clinicians were geared toward caring for this population. Despite the …

Comprehensive dementia care models: State of the science and future directions

KP Murali, JG Carpenter, A Kolanowski… - Research in …, 2025 - journals.healio.com
The rising prevalence of Alzheimer's disease and Alzheimer's disease–related dementias
has led to renewed public discourse and policy changes in response to the care needs of …

“I didn't sign up for this”: perspectives from persons living with dementia and care partners on challenges, supports, and opportunities to add geriatric neuropalliative …

KL Harrison, SB Garrett, M Halim… - Journal of …, 2022 - content.iospress.com
Background: In the United States, dementia specialty centers affiliated with centers of
excellence for research hold promise as locations to develop innovative, holistic care in care …

Functional and clinical needs of older hospice enrollees with coexisting dementia

KL Harrison, I Cenzer, AK Smith, LJ Hunt… - Journal of the …, 2023 - Wiley Online Library
Abstract Background The Medicare Hospice Benefit increasingly serves people dying with
dementia. We sought to understand characteristics, hospice use patterns, and last‐month‐of …

Measuring implementation fidelity in a cluster-randomized pragmatic trial: development and use of a quantitative multi-component approach

MB Olson, EM McCreedy, RR Baier, RR Shield… - Trials, 2022 - Springer
Background In pragmatic trials, on-site partners, rather than researchers, lead intervention
delivery, which may result in implementation variation. There is a need to quantitatively …

Challenges and solutions of conducting dementia clinical trials: A palliative care at home pilot for persons with dementia

LV Estrada, L Gelfman, M Zhang… - Journal of the …, 2024 - Wiley Online Library
Background Recruitment and retention are common challenges in clinical trials, particularly
with older adults and their caregivers who often benefit from palliative care but have …

A pilot observational exploratory study of well-being in hospice interdisciplinary team members

C Schneider, A Bristol, A Ford, SY Lin… - American Journal of …, 2022 - journals.sagepub.com
Introduction: Well-being and turnover intent represent key aspects to the promotion of a
healthy workforce. Alarming levels of burnout and low levels of well-being have been …

Ethical challenges of prospective clinical trials during the COVID-19 pandemic

MS McCarthy, MW McCarthy - Expert review of anti-infective …, 2022 - Taylor & Francis
Introduction The COVID-19 pandemic has created an unprecedented opportunity to
reimagine clinical research. While much has been written about the challenges associated …

[HTML][HTML] Aliviado mobile app for hospice providers: a usability study

D David, SY Lin, LL Groom, A Ford, AA Brody - Journal of pain and …, 2022 - Elsevier
Context Evaluation of usability and mobile health content is critical for ensuring effective
implementation of technology utilizing interventions tailored to the needs of hospice care …

Supporting dementia family care partners during COVID-19: Perspectives from hospice staff

SY Lin, T Jones, D David, RKF Lassell, A Durga… - Geriatric Nursing, 2022 - Elsevier
Objective The objective of this study is to explore the impact of COVID-19 on hospice
support to family care partners of persons living with dementia from the perspective of …