Unmet supportive care needs of families of children with chronic illness: A systematic review

S Thomas, NP Ryan, LK Byrne… - Journal of Clinical …, 2023 - Wiley Online Library
Abstract Background and Aims Unmet supportive care needs (SCN) refer to perceived gaps
in the support parents want to manage caregiving activities for children with chronic health …

Cohort profile: The ENTWINE iCohort study, a multinational longitudinal web-based study of informal care

S Elayan, E Bei, G Ferraris, O Fisher, M Zarzycki… - Plos one, 2024 - journals.plos.org
Informal care is a key pillar of long-term care provision across Europe and will likely play an
even greater role in the future. Thus, research that enhances our understanding of …

Unmet needs and depression among spousal caregivers: the mediating role of marital satisfaction

X Zhao, Q Zhang, H Xu, X Li, VWQ Lou… - Aging & mental health, 2023 - Taylor & Francis
Objectives Previous research has identified that unmet needs are associated with adverse
mental health outcomes in older adults. However, the unmet needs of older adults' spousal …

Associations between occupational balance, subjective health, and well-being of informal caregivers of older persons based on a cross-sectional study

A Röschel, C Wagner, M Dür - BMC geriatrics, 2022 - Springer
Objectives Population ageing leads to a noticeable increase in demand for informal care.
Informal caregivers experience high caregiver burden, such as restricted subjective health …

Effect of a tailored multidimensional intervention on the care burden among family caregivers of stroke survivors: a randomised controlled trial

MA Elsheikh, M Moriyama, MM Rahman, M Kako… - BMJ open, 2022 - bmjopen.bmj.com
Objectives To evaluate the effectiveness of a tailored multidimensional intervention in
reducing the care burden of family caregivers of stroke survivors. This intervention …

Psychological Distress Among Parents of Children With Chronic Health Conditions and Its Association With Unmet Supportive Care Needs and Children's Quality of …

S Thomas, NP Ryan, LK Byrne… - Journal of Pediatric …, 2024 - academic.oup.com
Objective To assess parent psychological distress in families of children with common
chronic health conditions (CHC) and to explore relationships between parent psychological …

[HTML][HTML] Design of a Dyadic Digital Health Module for Chronic Disease Shared Care: Development Study

C Benmessaoud, KJ Pfisterer, A De Leon… - JMIR Human …, 2023 - humanfactors.jmir.org
Background: The COVID-19 pandemic forced the spread of digital health tools to address
limited clinical resources for chronic health management. It also illuminated a population of …

Development and preliminary validation of a questionnaire on the care needs of family carers of older individuals with disabilities in China: a mixed methods study

C Zhou, Y Fang, E Zheng, L Zhu, Y Lu, Z Yin - BMC geriatrics, 2024 - Springer
Background Ensuring the wellness of older individuals with disabilities requires prioritising
the care needs of their carers. However, current practice lacks validated tools to measure the …

Considerations of equity in the development of tools that identify and respond to end-of-life carer support needs: a scoping review protocol

J Brooks, A Hall, J Higgerson, H Long, S Urwin… - BMJ open, 2024 - bmjopen.bmj.com
Introduction Informal caregivers are essential in supporting end-of-life patients at home but
are often ill-prepared for the carer role. There is growing interest in the development of tools …

Carers' needs assessment for patients with dementia in Ghana

NK Ayisi-Boateng, DA Opoku, P Tawiah… - African Journal of …, 2022 - scielo.org.za
Abstract AYISI-BOATENG, Nana K. et al. Carers' needs assessment for patients with
dementia in Ghana. Afr. j. prim. health care fam. med.(Online)[online]. 2022, vol. 14, n. 1, pp …