Family outcomes and perceptions of end-of-life care in the intensive care unit: a mixed-methods review

C Chen, J Michaels, MA Meeker - Journal of palliative care, 2020 - journals.sagepub.com
The purpose of this review was to evaluate end-of-life care (EOLC) in the intensive care unit
(ICU) from the perspective of family members. Sandelowski's segregated approach from …

[PDF][PDF] The caregiver role in palliative care: a systematic review of the literature

C Reigada, JL Pais-Ribeiro, A Novella, E Gonçalves - 2015 - repositorio-aberto.up.pt
Patients nearing the end of their life are daily confronted with complex decisions. Is essential
to ensure the continuity of care outside of the health institutions and, in this sense, a …

How shared is shared decision-making? A care-ethical view on the role of partner and family

I Van Nistelrooij, M Visse, A Spekkink… - Journal of medical …, 2017 - jme.bmj.com
The aim of shared decision-making (SDM) is to provide information to patients in order to
enable them to decide autonomously and freely about treatment together with the doctor …

Enhancing communication with family members in the intensive care unit: A mixed-methods study

K Edward, A Galletti, M Huynh - Critical Care Nurse, 2020 - AACN
Background Nurses in the intensive care unit are central to clinical care delivery and are
often the staff members most accessible to family members for communication. Family …

Do published patient decision aids for end-of-life care address patients' decision-making needs? A systematic review and critical appraisal

G Phillips, K Lifford, A Edwards… - Palliative …, 2019 - journals.sagepub.com
Background: Many decisions are made by patients in their last months of life, creating
complex decision-making needs for these individuals. Identifying whether currently existing …

A scheduling-based methodology for improving patient perceptions of quality of care in intensive care units

E Pérez, DP Dzubay - Health Care Management Science, 2021 - Springer
Research has found that hospitals with better scores on patient experience of care surveys
have better patient safety records and outcomes. Therefore, targeting ways of improving …

Do physicians discuss end-of-life decisions with family members? A mortality follow-back study

M Vermorgen, A De Vleminck, L Deliens… - Patient education and …, 2018 - Elsevier
Objective Deaths from chronic illness are often preceded by a potentially life-shortening end-
of-life decision (ELD). Involving family in these ELDs may have psychosocial benefits for …

Critical care nurses' experiences of ethical challenges in end-of-life care

L Palmryd, Å Rejnö, A Alvariza… - Nursing Ethics, 2024 - journals.sagepub.com
Background In Swedish intensive care units, nine percent of patients do not survive despite
receiving advanced life-sustaining treatments. As these patients transition to end-of-life care …

Taking family-centered care seriously

A Ho - The American Journal of Bioethics, 2020 - Taylor & Francis
In contemporary western bioethics, there is an emphasis on promoting patient autonomy in
making treatment decisions that are aligned with patients' priorities and values. The …

Trust and autonomy in end of life: considering the interrelation between patients and their relatives

G Marx, SO Boakye, A Jung… - Current Opinion in …, 2014 - journals.lww.com
Trust and autonomy in end of life: considering the interrela... : Current Opinion in Supportive
and Palliative Care Trust and autonomy in end of life: considering the interrelation between …